Resources for young carers

Caring for a person with dementia as a child, teen or young adult comes with its own unique challenges.

Mother and son smiling together.

Remember: It’s OK to take care of yourself, too!

You may have less time to do things that other people your age are doing. You may feel isolated from your friends. You may be experiencing a lot of pressure and stress.

It is important to learn how to cope with the feelings you might have, such as sadness and guilt, and to know where to get help if you need it. It can also be helpful to know how others deal with being a young carer.

You may also contact your local Alzheimer Society for more information and support.

Resources

  • Support Matters: A Guide for Young Carers and Their Allies. A By Us For Us© guide written by and for young carers. The guide examines factors that are important in the lives of young carers (children, youth, and young adults) who experience a shift in their family roles as a result of a family member’s exceptional needs or their unique family situation. It suggests ways to manage and cope with responsibilities and provides advice and guidance to adults and organizations on ways they can better support young carers in their community.
  • Young Carers Project. A project that involved young carers sharing information and resources, educating the community about the existence and needs of young carers and getting involved in national and international young carer movements.
  • Young Caregivers Association. In partnership with Alzheimer Society Brant, Haldimand Norfolk, Hamilton Halton, offers services, resources and awareness and empowerment for young caregivers and their families across Canada.

Looking after yourself

Providing care for someone living with dementia takes a tremendous toll on the physical and emotional health of the primary caregiver, yet many caregivers often don't recognize the warning signs, or deny its effects on their health.

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Young woman holding toy heart.

Reducing caregiver stress

As a caregiver, you need to take care of yourself. You are the most important person in the life of someone living with dementia. There are things you can do to help maintain your health and well-being.

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Senior woman thinking with some concern.

Finding help

Caring for someone with dementia can be a complex task. It can be frustrating, confusing, and emotionally and physically exhausting, though it has its rewards and good times. Whether you're a family, volunteer or paid caregiver, if you’re the only one providing care, you may wish to get help at some time.

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Please don't ever feel alone.