Privacy Notice

A Guide to the Collection, Use and Sharing of Your Personal Health Information

The Alzheimer Society is committed to protecting individual privacy and the confidentiality of the personal health information it holds.


Your health record includes important information about your health including your date of birth, health card number, contact information, health history, details of your physical and mental health, record of your visits, the care and support you received during those visits and information from other health care providers.


We collect, use, and share your health information to:

  • Provide health support and services based on your needs

  • Deliver our programs

  • Communicate with other healthcare professionals involved in your care

  • Seek your consent (or consent of a substitute decision maker) where needed

  • Plan, administer and manage our internal operations

  • Perform risk management, error management and quality improvement activities

  • Gather statistics

  • Complete research

  • Carry out client surveys

  • Follow legal and regulatory requirements

  • Fulfill other purposes permitted or required by law


Our collection, use and disclosure (sharing) of your personal health information is done following the Personal Health Information Protection Act, 2004 (PHIPA).


You have a right to make choices and control how your health information at the Alzheimer Society is collected, used, and disclosed, with some exceptions.

For most health care purposes, your consent to use your health information is implied as a result of your consent to using our programs and services, unless you tell us otherwise. From time to time, we may communicate about your care with your other health care providers, including collecting, using and sharing your personal health information through electronic medical information systems (sometimes called electronic health records, eHealth records, electronic medical records, etc.), unless you tell us you do not want us to do so.

In some cases, we must have your permission to give your health information to people who do not provide you with health care. We may also need consent to communicate with any family members or friends with whom you would like us to share information about your health (unless one or more of these individuals is your substitute decision-maker). 

When we require and ask for your consent, you may choose to say no. If you say yes, you may change your mind at any time. Once you say no, we will no longer share your information unless you say so, unless the law permits or requires us to do so.


There are times when we are required to share your personal health information without your consent. For example, to use your information for billing (when applicable), risk management or error management, quality improvement purposes, or if you are at risk of harm to yourself or others. Your health care providers are also required by law to respond to a subpoena and/or search warrant.


With limited exceptions, you have the right to access the health information we hold about you. 

You have a right to ask for a correction to your record if you believe the information is inaccurate or incomplete. 


If you would like to access your record, request a correction or know more about our privacy practices, please contact our Privacy Officer:

Denyse Newton, CEO

Alzheimer Society of Durham Region

1600 Stellar Dr., Suite 202

Whitby, ON L1N 9B2

(905) 576-2567

If, after contacting us, you feel that your concerns have not been answered to your satisfaction, you have the right to complain to the Information and Privacy Commissioner of Ontario. The Commissioner can be reached at:

Information and Privacy Commissioner of Ontario

2 Bloor Street East, Suite 1400

Toronto, Ontario M4W 1A8

Tel: 1-800-387-0073

Fax: 1-416-325-9195


A cookie is a piece of data sent to your web browser and stored on your hard drive. Cookies help us improve our website by tracking and targeting the interests of our users as they visit different sections of our site. Cookies do not contain any personal information.

Cookies are used to remember your login information for the Message Board, if you choose to save it.

In order to make our website better, we use Google Analytics to track how people use the site. Google Analytics is a web analytics service provided by Google, Inc., and it uses cookies to track information about the use of the site. This information is stored on Google’s servers in the United States and is used to compile and report on usage of the website.

You can use the Society website without cookies, but you may have to re-enter information each time you visit.

Last Updated: 06/02/2020