Local opportunities for participation
Be assured…..Before any study is added to this page, our Research Advisory Committee has reviewed the application to ensure that the study complies with the highest standards of ethics, and the Alzheimer Society of Nova Scotia holds a copy of that approval. Each study is overseen by a qualified researcher at an accredited Canadian Academic Institution. To review our criteria for inclusion check out Information for researchers.
We respect your privacy and hold your information in confidence. We do not make directly available to any researcher or other interested party names, contact information or any other information for the purpose of identifying the clients of the Alzheimer Society of Nova Scotia.
If you are interested in participation please contact the researcher at the contact numbers given.
Alzheimer’s Disease Caregivers Needed!
We are researchers from the Toronto Rehabilitation Institute, the University of Toronto, and York University who create assistive technologies to support people with dementia and their caregivers. We are looking for people who care for someone with Alzheimer’s disease to share their experiences with us through a questionnaire. This information will be used to create guidelines to help designers and engineers understand the needs and requirements of people with Alzheimer’s and their caregivers, which will help them to build better technologies.
If you are a caregiver for a person with Alzheimer’s disease who:
- provides at least 7 hours/week of unpaid care to a person with Alzheimer’s,
- can speak, read, and write fluently in English, and
- is not a formally trained caregiver (e.g. registered nurse),
You can also complete the questionnaire through the mail, over the phone, or in person.
If you would prefer one of these options, please contact the study’s research coordinator, Bing Ye, at [email protected] or by telephone at (416) 597-3422 Ext: 7910 or 1-888-220-0280 for more information.
The questionnaire should take about 30 minutes to complete.
If you are interested in learning more about our research please visit our website at www.iatsl.org or contact Bing Ye. We look forward to hearing your thoughts!
Dr. Alex Mihailidis, Principal Investigator and
Dr. Rose Czarnuch, Co-investigator
(Please note that the security of e-mail messages is not guaranteed. Messages may be forged, forwarded, kept indefinitely, or seen by others using the internet. Do not use email to discuss information you think is sensitive. Do not use e-mail in an emergency since e-mail may be delayed.)
For more information, download the flyer here.
Diffusion Weighted Magnetic Resonance Imaging in Patients with Parkinson’s Disease
Researcher: Roxanne Sterniczuk
Institution: Dalhousie University, IWK, QEII
Summary: By the time Parkinson’s disease (PD) and Alzheimer’s disease (AD) are diagnosed, a large number of nerve cells in the brain have already been affected. While no therapies for preclinical PD and AD are currently available, it is critical that better ways of detecting these diseases at their earliest possible stages, be developed. Various symptoms such as changes in brain structure, smell, or sleep/wake patterns, may be early indicators of developing PD and AD. Therefore, it is possible that testing for these symptoms, combined with MRI, can be used to diagnose these diseases prior to their characteristics symptoms (i.e., tremor, memory loss). This study will employ a combination of smell testing and assessment of sleep and activity behaviour, along with a sensitive magnetic resonance imaging technique called diffusion tensor imaging, in order to examine whether this diagnostic approach will allow us to detect PD and AD years earlier than normal. Treatments administered at this very early stage may stop the development of these diseases, or prevent lasting damage to the nervous system.
For more information, please e-mail [email protected] or call 473-2566. Please provide your name, phone number and the best time of day to reach you.
Sibling relationships across the life course: Baby boomers caring for an older brother or sister
Researcher: Holly Smith
Institution: Mount St. Vincent University
Summary: Concern about who will care for the increasing aging population is becoming a major issue in Canada. Between 1946 and 1964, almost 10 million baby boomers were born in Canada and they began to turn 65 in 2011 (Knickman & Snell, 2002). With so many children born within a short time frame, many of the boomers grew up with multiple siblings, each having a different relationship and a unique bond. This abundance of siblings may prove very valuable in the care demands of the future. Using tenets of social exchange and the life course perspective, this research will investigate the experiences of boomers who are the primary caregiver of a sibling who is aged 65 with a physical or mental acquired health condition and living in the community. Semi-structured qualitative interviews, guided by the constructivist paradigm, will be used to explore how sibling relations developed over the life-course and have affected the expectations and experiences of baby boomers as caregivers to their siblings in later life. Grounded Theory Methods will be used in an attempt to construct the stories of the participants in order to inform the area of sibling relationships of care in the later years. Coding techniques, including open, axial, and selective coding, aim to derive the most accurate story possible from each of the interviews. The results will highlight diversity within caregiving relationships and help to inform policies and practice that attempt to support older people with health care needs to remain in the community.
You may be eligible to participate if you:
- Were born between 1946 and 1964
- Are currently caring, or cared in the past, for an older brother or sister with an acquired physical or mental health condition related to age
For more information please contact: