Other resources for caregivers
The Alzheimer Society recognizes the significant investment of time and effort caregivers offer to their loved ones with Alzheimer’s disease or other dementias. Below are some resources to help you better understand Alzheimer’s disease and your role in helping your loved one. Also be sure to check out the Message Board to connect with other caregivers.
For local programs and support, please contact your local Alzheimer Society.
- Books on Alzheimer’s disease and caregiving
- For family caregivers
- Caregiver resources
Alzheimer Society of York Region. The New Millennium: A Plea for Flexibility, Creativity and Accountability in the Alzheimer's Universe. By Susan Hart, 1995
Alzheimer Society of York Region. The Lady from the Centre. A Guide to the Professional Caregiver's Universe. By Susan Hart, 1997
Alzheimer Society of York Region. Through Our Eyes. A Caregiver's Guide to the Alzheimer's Universe. By Susan Hart, 1997
Alzheimer Society of York Region. Collections: Portraits of Family Caregiving in the Alzheimer's Universe. By Susan Hart, 1999
Alzheimer Society of York Region. Finding Your Way. Perceptions of Concerned Caregivers. By Susan Hart, 2004
Alzheimer Society of York Region. Demystifying Dementia. By Susan Hart, 2001
Alzheimer Society of Canada. Alzheimer Journey: The Road Ahead, Module 1. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada. Alzheimer Journey: On the Road, Module 2. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada. Alzheimer Journey: At the Crossroads, Module 3. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada, Alzheimer Journey: Understanding Alzheimer Disease: The Link Between Brain and Behaviour, Module 4. Toronto: Alzheimer Society of Canada, 2002.
Alzheimer Society of Canada. Guidelines for Care. Toronto: Alzheimer Society of Canada, 1992. ISBN 0-9695301-2-9.
Alzheimer Society of Canada. A Personal Care Book. Toronto: Alzheimer Society of Canada, 1993.
Regional Geriatric Program of Eastern Ontario. From Home to Retirement Home: A Guide for Caregivers of Persons with Dementia.
Bowlby Sifton, Carol. Navigating the Alzheimer's Journey: A Compass for Caregiving. Health Professions Press, 2004. ISBN 1-932529-04-7. www.healthpropress.com.
Mace, Nancy L., and Rabins, Peter V. The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life. Baltimore, MD: Johns Hopkins University Press, 2006 (4th ed.). ISBN 0-8018-4034-1. www.press.jhu.edu.
Mindszenthy, Bart and Gordon, Michael. Parenting your Parents: Support Strategies for Meeting the Challenge of Aging in the Family. Dundurn Press, 2005 (2nd ed.). ISBN 1-55002-380-2. www.dundurn.com.
Tapp-McDougall, Caroline. The Complete Canadian Eldercare Guide. John Wiley Canada, 2004. ISBN 0- 470-83449-8. http://ca.wiley.com/WileyCDA.
Dementia and disasters e-learning program
When planning responses to a disaster, what can be done to prepare to care for vulnerable older adults who are frail or who have dementia? This online resource, Emergency Management, Frailty, Dementia and Disasters: What Health Care Providers Need to Know is an e-learning program helps health care providers, administrators and policy makers understand the vulnerability of older adults, how emergency management applies to them, ways to improve emergency preparedness, and the role of health care providers in protecting older people in emergencies and disasters. The program is hosted by the Canadian Dementia Research and Knowledge Exchange and is available in both English and French.
Canadian Virtual Hospice
The Canadian Virtual Hospice is an online community where you can find answers to your questions or share your experiences with serious illness or grief. Just like a hospice, the Canadian Virtual Hospice provides information and support for physical, emotional and spiritual concerns related to death and dying.
DementiaGuide.ca is a website to help people with Alzheimer's disease and their caregivers recognize, understand, record and monitor their symptoms through an interactive tool. For more information on this tool including subscriber cost, please visit the site.
ElderCare Online is a beacon for people caring for aging loved ones. Whether you are caring for a spouse, parent, relative or neighbor, this site provides an online community where supportive peers and professionals help you improve quality of life for yourself and your elder. Includes chats for caregivers.
Empowering Caregivers offers comprehensive emotional and spiritual support for all caregivers through experts, articles, newsletter, journal exercises, spotlights, healing circle, resources, inspiration, humor and much more. It is about choices, healing and opening to love.
Family Caregiver Alliance -- National Center on Caregiving
Programs to support and sustain the important work of families in the U.S. caring for loved ones affected by chronic, disabling health conditions.
How to Care
A Canadian site to help caregivers manage the realities of caring for an aging parent, a chronically ill spouse or friend, and themselves.
The Victoria Order of Nurses (VON Canada)
A national health care organization and a federally registered charity that has been caring for the lives and well being of Canadians in their homes and local communities since 1897.