Selecting one or more of the options below will update the content below.

Age Group
Type of Study
Study Format
Location
Target Population
  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Clinical Trial
    Online & In-Person

    What is this Study about?

    The study is entitled, “CIRCA-SK: Promoting social connection between people with dementia and caregivers,” and involves using a computer-based reminiscence tool to promote conversation between people living with dementia and their caregivers. The tool has been adapted to include content – photos, videos, and audio clips – that reflects life in Saskatchewan between the 1940s and 1980s. The content is generic, and sorted into categories, such as, “School Days,” “Working Life,” and “Entertainment.” The tool has been used successfully in the UK, and is now being adapted for audiences in Canada.

    Eligibility Criteria

    -are a care partner to someone with dementia

    -are a person living with dementia (which will be determined by a telephone assessment)

    -are the facilitator of a group of people living with dementia (i.e., a conversation circle or day program)

    -ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to understand the needs and experiences of caregivers in managing medications for people living with dementia (PLWD) to enhance future resources. In stage one, caregivers of PLWD will be interviewed to gain insights into their needs and preferences for resources. In stage two, healthcare providers from various backgrounds and settings will be interviewed to understand how they support medication management for PLWD.

    By understanding caregivers' experiences and needs in medication management, this study strives to contribute to the development of improved resources for caregivers. Ultimately, improving medication management practices has the potential to enhance the quality of life and health outcomes for both PLWD and their caregivers. By empowering caregivers with effective tools and resources, we contribute not only to the well-being of individual caregivers and care recipients but also to the broader societal goal of fostering a supportive and sustainable healthcare system for those affected by dementia.

    Eligibility Criteria

    You are eligible to participate if you are:

    - An caregiver who provides informal, unpaid care to a friend or family member diagnosed with any form of dementia

    - English speaking

    - Live in Ontario as their primary residence

    - Support in medication management activities weekly for at least 2 months. Examples of medication management activities include but are not limited to obtaining medications from the pharmacy, preparing and administering medications, and monitoring for side effects

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are conducting research to better understand what contributes to the perceived benefits and challenges of caring for a parent with dementia. As well, gain insight into why some caregivers have more positive experiences or more negative experiences. We are also exploring how family relationships and long-time relationship patterns impact the caregiving experience. With the use of a survey, we will gather demographics, followed by questions about mood, physical health, burden, caregiving experience and family dynamics.

    Eligibility Criteria

    Are over the age of 18 years old, living in Canada, and are an adult child providing support or care for a parent with dementia. Ability to speak English.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.

    Eligibility Criteria

    - Are a person living with dementia who is still driving or has stopped driving within the past 2 years

    - Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years

    - Are a healthcare provider who cares for people living with dementia

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are looking to create an online community of caregiving peers where the focus is on recording and sharing personal audio diaries and stories of caregiving. Caregivers and their partners will be asked to record regular audio diaries of their thoughts and experiences on dementia caregiving. Caregivers will then share some of these stories in facilitated small group discussions with a group of peers. Some of the themes and stories that emerge will be highlighted in a dementia caregiver podcast to share insights with the broader community.

    Eligibility Criteria

    Are a current unpaid caregiver to a family member/friend with physician-diagnosed dementia AND you are living with your respective care recipient

    Are a person living with any type of dementia (e.g., Alzheimer's, vascular, etc.) and with any stage of dementia (e.g., newly diagnosed, moderate, long-term advanced dementia)

    Ability to speak English

    Recruitment End Date

  • Clinical Trial
    In-Person

    What is this Study about?

    The Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s Disease (NITE-CAD) team is lifestyle intervention program to support care partners in helping improve sleep in people living with dementia. This program is based on an American program that has been modified to meet the needs of Canadians. The NITE-CAD program takes place over 6-weeks and consists of 1) education and goal setting, 2) self-directed physical activity, and 3) bright light exposure. This study is to help ensure the NITE-CAD program is feasible for future offerings.

    Eligibility Criteria

    • Care partner to someone living with dementia with sleep difficulties

    • Are living with dementia experiencing sleep difficulties, with a live-in care partner who is interested in participating

    • Able to speak and understand English

    • Have access to the internet and a computer with a camera and microphone

    • Able to participate in an exercise program

    • Sufficient cognitive function to follow two-step commands.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.

    Eligibility Criteria

    have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:

    • Person living with dementia

    • Care partner

    • Alzheimer Society staff

    • First responder

    • Service provider

    • Technology developer

    • Policy maker

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.

    Eligibility Criteria

    - Providing informal and unpaid care (e.g., spouses, children) for people living with dementia

    - Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia

    - Own a smartphone (e.g., iPhone, Android)

    - Not currently using a mobile app created for caregivers

    - Ability to speak English

    Recruitment End Date