This is the first part of a larger study focused on 50 couples. It builds on the findings of recent scientific studies and will determine if there is a difference in gut bacterial composition due to family history or inherited genetics. Live-in partners will serve as the control group. Participants provide a single saliva sample and a small amount of feces using a simple collection device. Participant-specific genetic information can be returned to participants if desired.
Les participant·es doivent : 1. avoir un parent qui vit ou a vécu avec la maladie d’Alzheimer; 2. avoir un·e partenaire de vie qui n’a aucun antécédent familial de trouble cognitif; 3. avoir entre 50 et 75 ans.
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
- S’identifier comme une personne vivant avec un trouble neurocognitif.
- S’identifier comme une personne proche aidante.
- Avoir plus de 19 ans.
- Avoir fait part de son diagnostic de trouble neurocognitif ou de son statut de personne proche aidante sur les réseaux sociaux.
- Parler anglais.
We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.
Pour qu’un couple soit admissible, l’une des deux personnes doit vivre avec des troubles de la mémoire ou de l’audition, et avoir déjà habité avec l’autre. – parler anglais.
Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.
- Currently a non-medical caregiver of a dementia patient who is living at home
- Over the age of 19
- Able to read, write and speak English
Exclusion Criteria
- Caregiver of a patient who is institutionalized (e.g. living in care facility)
- Under age of 19
- Health Care Professionals (e.g. care aides, hired help)
CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.
- Age 18 years or older
- Reside in Canada
- Have access to a computer/touchscreen device
- Can provide informed consent
- Do not have a diagnosis of dementia
- Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments
- Ability to speak English
This study is looking for caregivers to take part in a six-week creative movement group program, which aims to improve mental well-being and resilience.
Pour participer, vous devez : être l’aidant·e principal·e d’un·e membre de la famille (p. ex., parent) ou d’un·e partenaire vivant avec un trouble neurocognitif; être capable de vous exprimer en anglais.
The Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s Disease (NITE-CAD) team is lifestyle intervention program to support care partners in helping improve sleep in people living with dementia. This program is based on an American program that has been modified to meet the needs of Canadians. The NITE-CAD program takes place over 6-weeks and consists of 1) education and goal setting, 2) self-directed physical activity, and 3) bright light exposure. This study is to help ensure the NITE-CAD program is feasible for future offerings.
• Care partner to someone living with dementia with sleep difficulties
• Are living with dementia experiencing sleep difficulties, with a live-in care partner who is interested in participating
• Able to speak and understand English
• Have access to the internet and a computer with a camera and microphone
• Able to participate in an exercise program
• Sufficient cognitive function to follow two-step commands.
Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.
have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:
• Person living with dementia
• Care partner
• Alzheimer Society staff
• First responder
• Service provider
• Technology developer
• Policy maker
Les partenaires de soins de personnes vivant avec un trouble neurocognitif font face à un grand stress susceptible de nuire à leur santé mentale. L’objectif global de cette étude est d’évaluer une nouvelle application psychopédagogique offrant des stratégies de gestion du stress aux partenaires de soins de personnes vivant avec un trouble neurocognitif. Les résultats de cette étude sur une application visant à diminuer le stress associé à la prestation de soins ont le potentiel d’améliorer la qualité de vie des personnes prenant soin d’un membre de leur famille vivant avec un trouble neurocognitif.
- Offrir une aide naturelle non rémunérée (soins prodigués par le conjoint ou la conjointe, un enfant) à une personne vivant avec un trouble neurocognitif
- Offrir les soins primaires (c.-à-d. la majeure partie des soins, ou partager également la charge des soins avec une autre personne, comme sa mère ou un membre de la fratrie) à une personne vivant avec un trouble neurocognitif
- Avoir un téléphone intelligent (iPhone, Android)
- Ne pas déjà utiliser une application mobile destinée aux personnes proches aidantes
- Parler anglais
Société Alzheimer du Canada
20, av. Eglinton Ouest, 16e étage
Toronto, Ontario M4R 1K8
Informations et aiguillage: 1-855-705-4636
Courriel : [email protected]
No. d'enregistrement d'organisme de bienfaisance : 11878 4925 RR0001
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