Selecting one or more of the options below will update the content below.

Age Group
Type of Study
Study Format
Location
Target Population
  • Observational Study
    In-Person

    What is this Study about?

    Apathy, or reduced interest, initiative and emotion, is common in people living with Alzheimer’s disease and can affect quality of life and functioning. This study will test whether combining methylphenidate, an oral medication, with intermittent theta burst stimulation (iTBS), a non-invasive brain stimulation treatment, is more effective than iTBS alone for treating apathy in dementia. Information collected will help determine whether this combined approach may improve apathy and quality of life for people living with dementia and their care partners.

    Eligibility Criteria

    • Have Alzheimer’s disease or mixed Alzheimer’s/vascular disease of mild to moderate severity
    • Have apathy, such as less interest, initiative or emotion, for at least 4 weeks at the screening visit
    • Have been taking a stable dose for at least 4 weeks of any medication that affects thinking or behaviour
    • Have a care partner who spends at least 10 hours per week with you and can accompany you to study visits

    Recruitment End Date

  • Observational Study
    In-person & Online

    What is this Study about?

    This study aims to understand dementia caregivers' experiences, challenges, and training needs to help guide the development of a social robotic training system. The proposed system is envisioned to use role-playing scenarios based on the emotional behaviours and past identities of people living with dementia. A supporting mobile application is also being developed to work with the robot's training features. Caregivers' perspectives will help identify their needs and expectations for this social robotic training system.  

    Eligibility Criteria

    Participants must be (1) 18 years of age or older, (2) have past, current, or recent direct experience caring for a person living with a dementia-related disorder, and (3) be able to participate in a focus group or one-on-one interview conducted in English. Both formal (professional) and informal (family) caregivers are eligible to participate. 

    Recruitment End Date

  • Observational Study
    In-person & Online

    What is this Study about?

    This study aims to explore the hospitalization experiences of South Asian and Arab older adults with dementia and identify barriers and facilitators they encounter during their hospital stay in receiving culturally safe care. The information gathered will be used to identify gaps in current hospital dementia care practices and create resources and recommendations for policy and practice changes that promote culturally safe, inclusive dementia care for ethnic communities.

    Eligibility Criteria

    You are eligible to participate if you are:

    Older Adults:

    • an older adult aged 60 years or older
    • from the South Asian or Arab community
    • living in Edmonton
    • living with a diagnosis of dementia or currently undergoing the diagnostic process
    • currently hospitalized or have experienced hospitalization within the past year

    Caregivers

    • from the South Asian or Arab community
    • involved in caring for a family member living with dementia during hospitalization and hospital stay

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This research study explores the experiences of older men who provide care for a spouse or partner. This study is being conducted by researchers from the Men’s Health Research program, led by Principal Investigator Dr. John Oliffe, Professor and Tier 1 Canada Research Chair in Men’s Health Promotion, School of Nursing, at the University of British Columbia.

    Eligibility Criteria

    - Speak and understand English

    - Live in Canada

    - Self-identify as a man

    - Are aged 65 years or older

    - Are currently caring for a spouse/partner living in community, or an assisted living or long-term care home

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are currently recruiting people living with dementia and their caregivers (i.e., family members, friends, or formal care providers such as nurses and social workers) for a study examining experiences with time among people living with dementia. The ultimate objective of this study is to gain an in-depth understanding of the experience of time among people with dementia, including how they feel about the past, present, and future, and how this time-related experience affects their caregivers’ daily life and wellbeing. Data from this study may be published in peer-reviewed journals and presented at academic conferences.

    Eligibility Criteria

    You are eligible to participate if you:
    • Are 18 years of age or older
    • Reside in Canada
    • Are fluent in English
    • Have normal or adjusted normal hearing
    • Are a person living with dementia OR are a caregiver/formal care provider of a person living with dementia (e.g., family member, friend, social worker, long-term care staff, nurse)
    • Have access to a device with a reliable internet connection

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study explores dementia stigma within South Asian communities in Canada, a group that has been underrepresented in dementia research. Using a focused ethnographic approach, it aims to understand community beliefs and experiences related to dementia and identify ways to create a culturally appropriate dementia-friendly society.

    The study will: Examine South Asian cultural understandings of dementia and dementia-related stigma. Investigate how dementia affects the overall well-being of people living with dementia, their families, and caregivers. Explore how individuals make decisions about seeking healthcare and support. The research also seeks to understand how social, cultural, structural, and political factors contribute to dementia stigma and how culturally relevant anti-stigma interventions can be developed.

    Expected outcomes include: Generating new knowledge about dementia stigma in South Asian communities. Increasing awareness and promoting dementia-friendly environments. Sharing findings through academic publications, conferences, community presentations, and multilingual infographics in Bengali, Hindi, and Urdu to reach a broader audience.

    Eligibility Criteria

    You are eligible to participate if you:
    - live with dementia or provide care for a loved one living with dementia
    - live in the Greater Toronto and Hamilton Area (GTHA)
    - connect your roots or ethnicity to Bangladesh, India, or Pakistan
    - are sixteen years of age or older
    - can provide consent
    - speak English, Hindi, Urdu, or Bengali

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are identifying SuperAgers - older adults with memory as good as young adults - in the CLSA and evaluating the relationships between modifiable factors and SuperAger status. The study consists of a two-minute intake survey, followed by a 10-minute scheduled phone call on a later date, where we will conduct a series of memory related tasks.

    Eligibility Criteria

    We will be accepting individuals between the age of 20-45 who speak English 

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Despite the clinical benefit and favourable safety profile of using focused ultrasound to manage tremor caused by Parkinson’s Disease, there is currently limited gender and cultural diversity among the patients we treat. We will use questionnaires and patient-led discussions to identify factors that prevent (i) women and (ii) a broader range of races and ethnicities from considering focused ultrasound to manage tremor.

    Eligibility Criteria

    Have been diagnosed with Parkinson's Disease; Must speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    In the past, frailty and dementia were treated as distinct entities; however, it is now recognized that they share a complex relationship. As a result, there is an urgent need for the joint investigation of frailty and dementia. Our survey aims to bring together perspectives from stakeholders worldwide who share an interest in frailty and dementia. We are collecting data over the next several months, via various promotional "waves." Once we reach adequate participation and thematic saturation, we anticipate that data analysis and knowledge dissemination will take approximately six months.

    Eligibility Criteria

    • You are 18 years of age or older.
    • You have an interest in frailty and dementia.
    • This includes researchers, healthcare professionals, policy and decision-makers, older adults, care partners, advocates, and others with relevant interest or experience.
    • You speak English.

    Recruitment End Date