There are many different types of studies on dementia.
Observational studies are a very important type of research study. And observational studies are often looking for people to join.
Participating in these kinds of studies can help advance dementia research. But there are important factors to consider first.
What are observational studies?
Observational studies involve interviews and/or tests.
Participants in observational studies do not receive an intervention, therapy or drug.
Participants may be observed for a period of time. Or, they may be asked to complete tests and questionnaires related to what the research team is trying to investigate.
Risks and benefits of participating in an observational study
There are potential risks and benefits to participating in any kind of research. It's important that you understand these before participating in a research study.
- Download our full brochure on participating in research.
- This checklist of questions to ask is meant to help you make the best decision, for you and your family, about participating in research.
- We suggest that you use this sheet to take notes of the details of each clinical research study that interests you.
- Many of these questions will require a detailed conversation with someone working on the study.
Ethics issues to think about
To protect your dignity, rights safety and well-being, it is important that researchers adhere to ethical principles.
Research ethics boards are set up to ensure that studies conducted in Canada follow appropriate ethical standards.
The research ethics board requires the researcher to complete a detailed, multi-page form regarding all aspects of the proposed study so that the ethics of the study can be assessed.
For example, the researcher must answer questions about:
- the purpose of the study
- who will lead it
- how it will be conducted
- where and when the study will be implemented
To help ensure the safety of participants, a research study cannot begin until the research ethics board has approved the project.
Find a study near you
Ready to participate in an observational study?
Our portal includes online-only and in-person studies. It also includes opportunities for people living with dementia, carers, family members and others.
Our study portal is frequently updated with new opportunities. If you don't find what you are looking for today, check it again soon at alzheimer.ca/find-studies.