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Exploring gaps and identifying priorities in palliative care nutrition

What is this Study about?

You are invited to participate in a research study that will help us understand the current end-of-life (i.e., last months, weeks, or days) nutrition practices in long-term care (LTC) homes. Your perspective based on your experiences working in LTC can help us to develop educational resources for team members who support residents receiving palliative care at the end of their life. We hope this education will foster positive changes in attitudes and practices.

What Will Happen in This Study?

You are invited to participate in a virtual focus group to share your experiences and perspectives on nutrition in palliative care, including challenges and strategies. The focus group will be 60 to 90 minutes in length with 4-6 participants. Focus group discussions and interviews will be digitally recorded.

We will also ask demographic questions of age, gender, ethnicity, role and time working in LTC care.

You will receive a $25 honorarium as a token of appreciation for your time spent as a participant in this study.

Who is Eligible to Participate in this Study?

Registered nurses
Registered practical nurses
Personal support workers
Registered dietitians
Family members and friends (care partners) of residents who have received palliative care in LTC homes

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Researchers and Healthcare Professionals, Client Service Staff, Family members

Target Age Group(s)

18-40, 41-65, 66+

Study Location

Online

Waterdown, Ontario

Ontario

Study Contact

Niousha Alizadehsaravi
Graduate PhD student
University of Waterloo

Recruitment Start Date

June 23, 2025

Recruitment End Date

August 30, 2025
  • Learn more about observational studies
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Toronto, Ontario M4R 1K8
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