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Multigenerational caregiving at home for a relative with dementia amidst COVID-19: A qualitative multiple-case study

What is this Study about?

In collaboration with our South Asian community collaborators, our goal is to gain an in-depth understanding of new immigrant, multigenerational, South Asian family caregiving for a relative with dementia amidst COVID-19. The goal is to inform future family-centered, healthcare interventions aimed at supporting equity deserving families during times of crisis.

To achieve our goal, we are starting to recruit family care partners living in a multigenerational home and caring for a relative with dementia from each of the four groups of South Asian families. We will be using a multiple case study to examine new immigrant, multigenerational caregiving for a relative with dementia from the perspective of four groups of South Asian families; 1) Pakistani, 2) Bangladeshi, 3) Indian, and 4) Sri Lankan. We will also be using secondary data sources, including genograms, ecoMaps, and key documents.

We will be conducting interviews with a family care partners from each of the four groups. Following these interviews, we will hold four focus groups with a new purposeful sample of South Asian multigenerational care partners to understand if the findings from the interviews reflect their caregiving experiences thereby increasing the reliability of the study findings.

What Will Happen in This Study?

We will be inviting participants to participate in a 60-90 minute telephone or zoom interview.

For focus groups, we will be inviting participants to participate in a 90-120 minute focus group (in-person).

Participants can choose to either participate in interviews or focus group discussions.

Who is Eligible to Participate in this Study?

You are eligible if

1. You are caring for a family member or relative with memory loss or dementia

2. You are living in a multigenerational South Asian Family

3. You Identify with any of these four South Asian Countries: India, Pakistan, Bangladesh and Sri Lanka

4. You live in the Greater Toronto Area (GTA)

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Family members

Target Age Group(s)

18-40, 41-65, 66+

Study Location

Online

Toronto

Ontario

Study Contact

Afroza Sultana
Postdoctoral Fellow
McMaster University

Recruitment Start Date

November 25, 2024

Recruitment End Date

December 31, 2026
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Email: [email protected]

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