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Exploring the Uptake and Impact of the Driving and Dementia Roadmap

What is this Study about?

The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

What Will Happen in This Study?

Participants will be asked to use the Driving and Dementia Roadmap website for 2 to 6 weeks. They will asked to make notes in a diary as they use the website. After using the Driving and Dementia Roadmap participants will take part in an interview (about 1 hour) or a focus group (about 2 hours) where they will be asked what using the website was like for them (e.g., what they liked or didn’t like, what was useful, how did it affect their experience of stopping to drive, etc.). Interviews and focus groups will take place online or via telephone. 

Who is Eligible to Participate in this Study?

You are eligible to participate if you are a: 

a) Person living with dementia who is still driving or has stopped driving within the past 2 years 

b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years 

c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia 

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Researchers and Healthcare Professionals, Family members, Person living with dementia

Study Location

Online

Online

Canada-Wide

Study Contact

Elaine Stasiulis
Research Associate
Baycrest Academy for Research and Education

Recruitment Start Date

September 24, 2025

Recruitment End Date

July 12, 2026
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