Assessing the Impact of Day programs on individuals living with Dementia and their family/friend Caregivers

What is this Study about?

This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

What Will Happen in This Study?

If you choose to take part, you can share your experiences in the way that feels most comfortable. Options include joining a Zoom focus group (30–60 minutes), taking part in a one-on-one Zoom interview (30–45 minutes), or completing caregiver surveys at three points over two years (about 60 minutes each). If helpful, we may also have a brief chat with the person attending a day program, either over Zoom or at the day program (20–30 minutes). You may choose any combination of activities, and you can withdraw whenever you wish.

Who is Eligible to Participate in this Study?

You are eligible to participate if you:

• Are an older adult living with dementia who attends or does not attend a day program

• You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program

• Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)

• Are able to take part in a conversation or complete surveys, with support if needed

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