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Supporting safe and healthy sexual expression for people living with dementia in long-term care settings

What is this Study about?

We developed a resource to support substitute decision-makers as they work through issues related to the sexual expression of individuals living with dementia in long-term care homes. The purpose of this pilot is to evaluate and assess how the content and format of the resource is received by a sample of substitute decision-makers and longterm care staff members. Through online surveys, we will be seeking feedback related to accessibility, potential usefulness in practice, effectiveness in increasing awareness and preparedness to address issues related to sexual expression.

What Will Happen in This Study?

If you agree to participate, you will receive a link to an initial survey via REDCap. After completing this survey, you will be sent a copy of the resource to review and a link to complete the follow-up survey. We ask that over a period of two weeks, you:

1) complete an initial survey (~15-30 minutes);

2) read and review the PDF document (~60-90 minutes to read 30 pages); and

3) complete a follow-up survey (~30 minutes).

Who is Eligible to Participate in this Study?

- are a substitute decision-maker of a person living with dementia in residential long-term care in Alberta or Ontario OR someone currently working with people living with dementia in residential long-term care in Alberta or Ontario;

- are a person who is 18 years of age or older;

- are a person able to read and write in English

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Researchers and Healthcare Professionals, Family members

Study Location

Online
Canada-Wide

Study Contact

Romeo Colobong
Study Coordinator
KITE Research Institute - University Health Network

Recruitment Start Date

April 17, 2026

Recruitment End Date

July 15, 2026
  • Learn more about observational studies
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Alzheimer Society of Canada
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Toronto, Ontario M4R 1K8
Telephone: 1-800-616-8816
Email: [email protected]

Charity registration number: 11878 4925 RR0001

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