Benefits and Challenges of Caregiving (BACC): Assessing Caregiver Outcomes and Family Relationships
What is this Study about?
We are conducting research to better understand what contributes to the perceived benefits and challenges of caring for a parent with dementia. As well, gain insight into why some caregivers have more positive experiences or more negative experiences. We are also exploring how family relationships and long-time relationship patterns impact the caregiving experience. With the use of a survey, we will gather demographics, followed by questions about mood, physical health, burden, caregiving experience and family dynamics.
What Will Happen in This Study?
Participants will be asked to complete an online survey. Participants can also request to have the survey mailed or completed over the phone. The survey questions are gathering data about the person providing support or care, the care recipient, about their caregiving experience and family relationships (e.g., stress levels, mood, burden, family dynamics). At the end of the survey, participants will be asked to indicate if they would like to be contacted to participate in the optional second part of the interview (which involves completing a genogram with the researcher). This survey will take approximately 15-30 minutes.
Who is Eligible to Participate in this Study?
Are over the age of 18 years old, living in Canada, and are an adult child providing support or care for a parent with dementia. Ability to speak English.
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