CAregiver REported and weighted Dementia outcome measure (CARED)
What is this Study about?
Caregivers of people living with dementia have direct experience of how the dementia is progressing. They are essential in evaluating the real-world benefits of treatment and making decisions to keep the person at home or consider different levels of care. The aim of this study is to develop a new CAregiver REported and weighted Dementia outcome measure (CARED).
The information will be used to create a new dementia outcome measure from the perspective of caregivers.
This study has been reviewed by the Hamilton Integrated Research Ethics Board under Project #14086.
What Will Happen in This Study?
Participants will fill out a survey and participate in an online focus group with other caregivers from the dementia community. The survey will take approximately 10-15 minutes and the online focus group will be 45-60 minutes. Participants will be given a $10 gift card for their time.
Who is Eligible to Participate in this Study?
To be eligible to participate in this study, you must meet the following criteria:
- You must be a caregiver that has provided at least four hours of care each day for the past six months to an individual living with dementia; and
- You must provide assistance with at least one activity of daily living (e.g., grooming) or two instrumental activities of daily living (e.g., shopping, gardening).
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