Promoting Compassionate End of Life Care for People Living with Dementia Using Documentary Film

What is this Study about?

The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.

In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.

What Will Happen in This Study?

Participants will participate in one 1-1.5 hour research conversation group of 5-7 people about what

compassionate, relational end-of-life care could look like from their perspectives. If participants would prefer to participate in a one-on-one research conversation, we are happy to support this. Research conversation groups will be conducted on Zoom, an on-line platform, and one-on-one conversations will be conducted on Zoom or over the telephone. Before the research conversations, participants will also be asked to provide some demographic information (e.g., age, gender, education etc.) through a short online survey operated by Qualtrics.

Who is Eligible to Participate in this Study?

You are eligible to participate if you...

Live in Canada

Are a Canadian citizen or permanent resident

Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care

Are able to speak English

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