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Rethinking Dementia Care in Hospitals: Addressing Stigma for Better Outcomes

What is this Study about?

This study explores the hospital experiences of people living with dementia and their care partners, focusing on how hospital and emergency department processes and interactions, often influenced by dementia stigma, influence care quality and outcomes. Insights gathered through interviews will identify barriers and opportunities to improve hospital care for this population. Findings will be used to develop recommendations that promote more responsive, inclusive, and compassionate hospital practices for people living with dementia and their care partners.

What Will Happen in This Study?

Participation involves a single interview of about 60 minutes to share experiences of receiving hospital or emergency room care. The interview can be held virtually (via Microsoft Teams) or in person at 200 Lees Ave (Ottawa), based on participant preference.

Who is Eligible to Participate in this Study?

-Live with dementia or are a care partner of someone living with dementia

-Have experience receiving care in a hospital or emergency department in Canada

-Are comfortable participating in a one-hour interview (in English or French)

-Can provide informed consent, proxy consent, or assent

Get in Touch About this Study

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In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Family members, Person living with dementia, Person living with Alzheimer’s disease, Person living with mild cognitive impairment, Person living with Parkinson’s disease dementia, Person living with Huntington’s disease dementia

Target Age Group(s)

66+

Study Location

Online

University of Ottawa

Ontario

Study Contact

Alixe Ménard
Doctoral Candidate
University of Ottawa

Recruitment Start Date

September 10, 2025

Recruitment End Date

September 10, 2026
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