A Virtual Community of Practice for Family and Friend Caregivers of Persons Living with Dementia
What is this Study about?
The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.
What Will Happen in This Study?
For Phase 1, persons living with dementia and caregivers will co-design the Community of Practice
website and resources.
(a) participate in two 60-minute workshop co-design meetings with other research partners by Zoom;
(b) participate in one 30-minute follow-up interview; and
(c) complete surveys.
For Phase 2, caregivers will be supported through the Community of Practice to deliver a personalized
program called Namaste Care.
(a) participate in one 60-minute training session by Zoom;
(b) deliver the Namaste Care program for 3 months (all supplies provided);
(c) complete brief questionnaires; and
(d) participate in one 30-60 minute interview.
Who is Eligible to Participate in this Study?
Meet the following criteria for Phase 1:
Person living with dementia:
(a) aged 40 years or older with a diagnosis of dementia; and
(b) currently living in Canada.
Family or friend caregiver:
(a) aged 18 years or older and with experience in the last five years providing physical, emotional, and/or psychological support for a family member or friend living with dementia at home or in long-term care;
(b) currently living in Canada
Meet the following criteria for Phase 2:
Family or friend caregiver:
(a) aged 18 years or older and currently providing physical, emotional, and/or psychological support for a family member or friend with dementia at home or in long-term care;
(b) currently providing at least four hours of support a week for a person living with dementia; and
(c) currently living in Canada.
(d) must speak English
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