What Matters: Family Caregivers’ Priorities for Healthcare Decisions at End of Life

What is this Study about?

We are conducting this research to learn more about family caregivers experiences and values when it comes to making care-related decisions on behalf someone with dementia at the end of life. We hope that by understanding diversity in experiences and values, we can contribute to the development of resources to support discussions with families preparing for the end of life. Results will be summarized in a Ph.D. dissertation. Additionally, results will be shared at a research conference, and maybe at one or more conferences or webinars for healthcare researchers or employees. Finally, results may be published in a journal article.

What Will Happen in This Study?

You will be asked to rank a set of statements by importance from your own experience. These statements involve aspects of support at the end of life from the perspective of a caregiver. Next, you will be asked to describe how you sorted the statements and why you prioritized the items you did. These two activities are expected to take about 90 minutes.

Who is Eligible to Participate in this Study?

over 18 years old

were involved in decision making for a family member or friend who died with dementia in Saskatchewan

your family member or friend died least 3 months ago

are comfortable speaking about your experience with your family members end of life

can read large print statements written in English

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