Dementia in the Black community
These videos provide information about dementia within the Black community. They include stories from people living with dementia, care partners and health-care providers.
This video series is a resource for health-care providers, care partners, people living with dementia, and anyone interested in understanding the unique experiences of the Black community with dementia. The videos were created in collaboration with health-care providers, people living with dementia, and care partners.
Watch each video to learn more about the impact of dementia on the Black community and how you can provide support.
Dementia in the Black Community: The Black Community working group
The National Dementia Guidelines Black Community Working Group shares their personal and professional experiences with dementia, offering key messages on how best to support people living with dementia and their care partners.
Granville Johnson’s story
Granville, a person living with vascular dementia and author of Backstory The Many Lives of Granville Johnson, shares his experience of living with dementia and discusses the stigma surrounding it. He encourages people to get diagnosed, be hopeful and build a community of support.
Agnes Chinelo’s professional story
Dr. Agnes Chinelo, known for her web series Talk with Dr. Agnes, shares her experience as a physician supporting people living with dementia. This video also includes important considerations for health-care providers working with ethno-racialized communities.
Agnes Chinelo’s personal story
Dr. Agnes Chinelo, known for her web series Talk with Dr. Agnes, discusses her personal experience caring for her father, who lived with dementia. She talks about care partner guilt and stigma, sharing a specific emotional experience with her father.
Angeleta Cox’s story
Angeleta shares her story as a care partner to her mother, who lives with dementia. She describes the changes her mother has experienced and discusses common challenges and frustrations many care partners face.
Jennifer Oteng’s story
Jennifer, a geriatric nurse in Ontario’s health-care system, discusses her experiences and highlights areas for improvement within the system.
Valene Campbell’s story
Valene, author of The Amazing Zoe book series, talks about supporting her mother’s increasing needs while also caring for her daughter as a sandwich-generation care partner.
Tashani Parker’s story
Tashani, a social worker, shares important considerations for supporting and interacting with people from ethno-racialized backgrounds, specifically within the Black community.