Assessing the Usability of DataDay: A Self-Management Tool for People with Dementia

What is this Study about?

This study examines how DataDay, a smartphone and tablet app, may improve quality of life for patients with mild to moderate dementia or mild cognitive impairment (MCI) and their caregivers. Many manage dementia at home without regular health services, increasing caregiver burden and reducing patient empowerment. DataDay tracks cognition, mood, nutrition, and physical activity, offering reminders and graphs to monitor changes. Participants will use the app for six weeks to assess its feasibility, usability, and impact on quality of life. Findings will guide future app development to better support dementia patients and caregivers in managing daily tasks and well-being.

What Will Happen in This Study?

The 6-week study will consist of the following:

● Initial Session (~1 hour, in-person)

– Demographic questionnaire (5 minutes to complete)

– Quality of Life in Alzheimer’s Disease (QoL-AD) questionnaire (10-15 minutes) and proxy version (5 minutes)

– Zarit Burden Short Form (Caregivers only, 10 minutes)

– 30-minute training session with the DataDay App

● Using DataDay

– Daily for 6 weeks

● Follow-Up at 3 Weeks (~15-20 minutes)

– Phone call check-in

● Final Session (~1 hour, virtual)

– Audio-recorded interview to gather insights into the usability and effectiveness of DataDay

– Repeat QoL questionnaires

Who is Eligible to Participate in this Study?

– Are 18 years of age or older

– Are diagnosed with dementia (any type) or MCI (Patients can have moderate dementia insofar that they can understand and provide informed consent)

– Have the capacity to consent independently

– Are a caregiver: Must be caring for a person living with mild to moderate dementia or MCI

Please note: Access to a smartphone or tablet is not a requirement for participation. Participants may use their own device if they wish or can be supplied a tablet for the duration of the study. Access to Wi-Fi is not required.

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