Development of a CAregiver Reported outcome measure for Dementia (CARED)

What is this Study about?

Caregivers know the person living with dementia the best. Caregivers are crucial in judging the real-world benefits of treatment and making decisions about their loved one’s care.

We have co-produced with caregivers a new CAregiver REported outcome measure for Dementia (CARED). We would like your help to test this measure. To participate in this study, you would fill out the new questionnaire (CARED) and answer some questions about your caregiving experience.

This study has been reviewed by the Hamilton Integrated Research Ethics Board under Project #14086.

What Will Happen in This Study?

Participants will fill out the online surveys about their caregiving experience. The survey involves:

  • A short demographic questionnaire.
  • CARED questionnaire and related surveys about daily activities and function.
  • Complete the CARED questionnaire again after 2 weeks and 4 weeks.

The initial survey takes about 30 minutes, and follow-ups (at 2 & 4 weeks) take 5-10 minutes each.

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Who is Eligible to Participate in this Study?

You are eligible to participate if you are:

  • A caregiver, at least 18 years of age, and supporting a friend, partner, or family member with a diagnosis of dementia living in the community.

 

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