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Diversifying Research through the Experiences & Attitudes of Minorities (DREAM) – Survey

What is this Study about?

This survey is aimed at gathering the perspectives of people from underserved groups in dementia research about the usefulness of recommendations to improve diversity in dementia research studies. Information gathered will identify what works, what doesn't, and what and what research can improve on to include more diverse voices.

What Will Happen in This Study?

Participants will complete a short 30-minute online survey, asking whether recommendations to improve diversity in dementia research are helpful, and/or feasible.

• Take the survey here: https://ubc.ca1.qualtrics.com/jfe/form/SV_7VyjjwgT8eoTeYe

Who is Eligible to Participate in this Study?

You are eligible to participate if you are:

1) Involved in dementia research or services

AND / OR

2) from an underserved group* in dementia research.

3)Aged 19 +

3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

*Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Healthy volunteers, Caregivers, Researchers and Healthcare Professionals, Client Service Staff, Family members, Person living with dementia, Person living with Alzheimer’s disease, Person at risk of Alzheimer's disease (AD) or living with pre-clinical AD, Person living with mild cognitive impairment, Person living with Parkinson’s disease dementia, Person living with Huntington’s disease dementia

Target Age Group(s)

18-40, 41-65, 66+

Study Location

Online
Canada-Wide

Study Contact

Susanna Martin
Research Assistant
The University of British Columbia

Recruitment Start Date

January 12, 2024

Recruitment End Date

October 31, 2024
  • Learn more about observational studies
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