Enhancing Virtual Palliative Care for Family Caregivers in Rural Ontario Navigating Dementia Through Co-Design

What is this Study about?

We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease. Compassionate palliative care is essential for individuals with dementia and their caregivers. However, many families living in rural settings cannot access palliative care unless it is through virtual methods. This study aims to address these challenges by involving caregivers and healthcare professionals to co-design virtual palliative care support.

What Will Happen in This Study?

By participating, individuals will have the chance to reflect on their experience, identify gaps in current services, and help shape palliative care models that better meet the needs of families living in rural areas. Participants may also learn about services that they didn’t know existed. Your support will directly inform the development of more accessible palliative care for caregivers and people living with Alzheimer’s.

1. Participants will be involved in a one-on-one interview describing their perceptions of palliative care and virtual support needs.

2. Duration: 1 hour

3. All participants will receive an honorarium of $25

Who is Eligible to Participate in this Study?

1. Are a family member/caregiver providing care to a loved one with terminal dementia.

2. Healthcare providers who medically practice in rural Ontario, focused on delivering palliative care to family caregivers of individuals with dementia

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Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.