Examining Social Support among Black Dementia Caregivers in the Greater Toronto Area

What is this Study about?

This study examines how Black family caregivers in the Greater Toronto Area experience and access social support while caring for a relative living with dementia. Using Straussian Grounded Theory informed by Critical Theory and Intersectionality, the research explores how factors such as race, culture, gender, and community shape caregiving experiences and support-seeking behaviours. Findings will be used to develop theory grounded in the lived experiences of Black caregivers, and to inform more culturally responsive dementia care policies, services, and supports across Canada. This study has been approved by the York University Research Ethics Board (Protocol 130, April 2026).

What Will Happen in This Study?

This study involves one confidential interview lasting about 60 to 75 minutes, either by Zoom or in person in a private, pre-arranged location, depending on participant preference and availability. Some participants may also be invited to take part in a later 90-minute focus group discussion on Zoom.

Who is Eligible to Participate in this Study?

You are eligible to participate if you:

  • self-identify as Black (for example, African, Caribbean, Black Canadian, Afro-Latin, or another Black identity)
  • are 18 years of age or older
  • live in the Greater Toronto Area
  • provide unpaid care to a family member living with dementia
  • can speak and understand English well enough to take part in an interview

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