Using Translational Research to Improve Social Connection of Young Carers of People Living with Dementia

What is this Study about?

Aim: To explore and improve the social connection of young caregivers of people living with dementia (YCPLWD) in Ontario. Social connection is defined as “how people connect to each other, and it's made up of multiple distinct aspects”. In Phase 1, we will conduct focus groups with YCPLWD to explore their social connection.

Information acquired from focus groups will be used to identify and categorize the key barriers and facilitators to social connection. Additionally, this knowledge will inform Phase 2 of our project, where YCPLWD can share their ideas and insights to co-create a social connection intervention.

What Will Happen in This Study?

For Phase 1 Focus Groups: Young dementia caregivers will attend and contribute to a 1.5-2-hour focus group discussion with fellow caregivers. Individuals will be asked about their social experiences as young dementia caregivers, as well as the main barriers and facilitators to social connection. Focus groups will be offered either inperson at the University of Toronto or online. Participants will receive an appreciation of $20 to thank them for their time.

Who is Eligible to Participate in this Study?

You are eligible to participate if you are...

- Aged 18 – 30 years

- Fluent in English

- Currently living in Ontario

-Currently enrolled in a post-secondary institution within the GTHA

-Currently providing care or have provided care in the past 3 years to someone living with dementia (including but not limited to dressing/grooming, administering medications, providing practical/financial care and/or emotional support)

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.