What is this Study about?

The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.

In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.

What is this Study about?

The aging of the Canadian population and the lack of care personnel increase the number and responsibilities of family caregivers with the elderly. By adopting the first policy recognizing caregivers in Quebec in April 2021, the Quebec government is committed to better supporting caregivers in order to lighten their burden. The time is more appropriate than ever to highlight the reality of informal support for seniors from ethnocultural communities in the context of immigration. More specifically, our study aims to identify the trajectories of caregiving within the Maghreb community. Collecting data from key people would allow us to have an external perspective on the issue studied and would enrich our understanding of the realities and experiences of caregivers in the context of immigration (case study: the North African community), of their network of support as well as the potential impact of migration trajectories and Maghrebian culture on his practice of close care.

What is this Study about?

This study explores the experiences of people with a stroke-related communication disability in financial environments such as banks, potential challenges regarding participation in financial environments, and looks for strategies to enhance their financial inclusion.

This study will allow adults with post-stroke communication impairments to have a voice to talk about their problems and challenges in financial environments and will provide them with strategies to enhance their financial inclusion, independence, and quality of life.

What is this Study about?

The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.

What is this Study about?

This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With

Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute

decision-maker and how ideas about capacity, consent, and decision-making affect them.

Interviews will be conducted with:

- People who are facing dementia alone

- Healthcare and social service workers

- Substitute decision-makers for others who are not close family members or close friends

The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to

better support people facing dementia alone.

What is this Study about?

VRx@Home is a 5-week virtual reality at-home intervention with the goal to explore whether virtual reality experiences can enhance communication between persons living with dementia and their care partners. We also aim to explore how a head-mounted VR system, which delivers a fully immersive experience compares to a Tablet-based technology.

What is this Study about?

We are conducting a study to better understand caregiving experiences in order to validate a new tool to help screen for caregiver burden related to swallowing difficulties. The information you provide will be combined with information from other participants to help us better understand caregiving experiences, especially related to swallowing difficulties.

What is this Study about?

Caregivers of people living with dementia have direct experience of how the dementia is progressing. They are essential in evaluating the real-world benefits of treatment and making decisions to keep the person at home or consider different levels of care. The aim of this study is to develop a new CAregiver REported and weighted Dementia outcome measure (CARED).