The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
The aging of the Canadian population and the lack of care personnel increase the number and responsibilities of family caregivers with the elderly. By adopting the first policy recognizing caregivers in Quebec in April 2021, the Quebec government is committed to better supporting caregivers in order to lighten their burden. The time is more appropriate than ever to highlight the reality of informal support for seniors from ethnocultural communities in the context of immigration. More specifically, our study aims to identify the trajectories of caregiving within the Maghreb community. Collecting data from key people would allow us to have an external perspective on the issue studied and would enrich our understanding of the realities and experiences of caregivers in the context of immigration (case study: the North African community), of their network of support as well as the potential impact of migration trajectories and Maghrebian culture on his practice of close care.
- Be a person over 18 years old.
- Identify yourself as a person of North African origin, i.e. from Morocco, Algeria, Tunisia, Libya and Egypt.
- Be a permanent resident, Canadian citizen by naturalization. Or be born in Canada and have at least one parent born in the Maghreb (Morocco, Algeria, Tunisia, Libya, Egypt).
- Reside in Quebec
- Support an elderly relative who also lives in Quebec or have supported an elderly relative during the last five years.
This study explores the experiences of people with a stroke-related communication disability in financial environments such as banks, potential challenges regarding participation in financial environments, and looks for strategies to enhance their financial inclusion.
This study will allow adults with post-stroke communication impairments to have a voice to talk about their problems and challenges in financial environments and will provide them with strategies to enhance their financial inclusion, independence, and quality of life.
• Live with stroke-related speech or communication disability,
• Have done financial activities or have been in financial places after your stroke,
• Live in Manitoba,
• Are 18 years old or more,
• Are interested in taking part in this study,
• Agree to be audio or video recorded during the study interview.
The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.
Meet the following criteria for Phase 1:
Person living with dementia:
(a) aged 40 years or older with a diagnosis of dementia; and
(b) currently living in Canada.
Family or friend caregiver:
(a) aged 18 years or older and with experience in the last five years providing physical, emotional, and/or psychological support for a family member or friend living with dementia at home or in long-term care;
(b) currently living in Canada
Meet the following criteria for Phase 2:
Family or friend caregiver:
(a) aged 18 years or older and currently providing physical, emotional, and/or psychological support for a family member or friend with dementia at home or in long-term care;
(b) currently providing at least four hours of support a week for a person living with dementia; and
(c) currently living in Canada.
(d) must speak English
This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With
Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute
decision-maker and how ideas about capacity, consent, and decision-making affect them.
Interviews will be conducted with:
- People who are facing dementia alone
- Healthcare and social service workers
- Substitute decision-makers for others who are not close family members or close friends
The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to
better support people facing dementia alone.
You are eligible to participate if you:
- Live in Ontario or Alberta AND
- Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are
facing dementia alone OR
- Are a healthcare or social service worker, or other professional who has experience trying to connect
adult clients with a substitute decision-maker OR
- Have experience as a substitute decision-maker for someone living with dementia who is not a close
family member or friend
In addition, to be eligible you must:
- Be able to participate in an interview over the phone, on Zoom, or in-person AND
- Understand the purpose of the study and what participation involves
VRx@Home is a 5-week virtual reality at-home intervention with the goal to explore whether virtual reality experiences can enhance communication between persons living with dementia and their care partners. We also aim to explore how a head-mounted VR system, which delivers a fully immersive experience compares to a Tablet-based technology.
We are conducting a study to better understand caregiving experiences in order to validate a new tool to help screen for caregiver burden related to swallowing difficulties. The information you provide will be combined with information from other participants to help us better understand caregiving experiences, especially related to swallowing difficulties.
Caregivers of people living with dementia have direct experience of how the dementia is progressing. They are essential in evaluating the real-world benefits of treatment and making decisions to keep the person at home or consider different levels of care. The aim of this study is to develop a new CAregiver REported and weighted Dementia outcome measure (CARED).