Selecting one or more of the options below will update the content below.

Age Group
Type of Study
Study Format
Location
Target Population
  • Observational Study
    Online

    What is this Study about?

    Behavioral and emotional changes often accompany dementia and are a leading cause of long-term care placement, even more so than cognitive decline. This study is the first to explore how family caregivers make treatment decisions in response to these emotional and behavioural symptoms. We are interested in understanding whether caregivers turn to medications, consider non-pharmacological strategies such as environmental modifications, or use a combination of both. Using a quantitative behavioural economics model, this study will examine how caregivers weigh the risks and benefits of different treatment options. We are particularly interested in decision-making related to dopaminergic medications (formerly known as “antipsychotics”), which are commonly prescribed despite known risks for people with dementia. The information gathered will help guide the development of resources to better support family caregivers in navigating treatment decisions. Participation involves completing an anonymous online survey and is open to family caregivers involved in medical decision-making for a relative or close friend with dementia.

    Eligibility Criteria

    Participants will consist of caregivers of individuals with dementia who meet the following eligibility criteria:

    Participants must be at least 18 years old,
    Participants must be able to read English fluently,
    Participants must be a family caregiver (partner, spouse, family member, or close friend) of a
    person with dementia
    Participants must be involved in the medical decision-making for the person with dementia,
    Participants must have access to a desktop computer, laptop, or another device with a physical keyboard and mouse/trackpad,
    Participants must not be a professional healthcare provider (e.g., physician, nurse, certified nursing assistant).

    Additionally, the person with dementia whom they are assisting must be community-dwelling (i.e., they cannot be residing in a residential or skilled nursing facility).

    Recruitment End Date

  • Observational Study
    In-Person and Online

    What is this Study about?

    Participants will take part in a one-on-one interview (in person or online) to share thoughts on reminders and changes in behavior that should be tracked by the system. Interviews will last about 60 minutes. A short follow-up (20 minutes or less) may also be requested later to provide extra feedback on the system’s design.

    Eligibility Criteria

    You are eligible to participate if you:

    - Are an informal caregiver of a person living with dementia
    - Provide at least 30 hours of care per week
    - Speak and understand English
    - Are able to give informed consent
    - (Optional) The person you care for may also join if eligible
     

    Recruitment End Date

  • Observational Study
    In-Person and Online

    What is this Study about?

    This study is testing a digital reminder system for people living with dementia. The system sends alerts when daily routines change and collects feedback from caregivers. The goal is to improve the system’s design and usefulness. Results will help make reminder tools more supportive for people living with dementia and their caregivers.

    Eligibility Criteria

    You are eligible to participate if you are a person living with dementia and you:
    - Have a clinical diagnosis of mild to moderate dementia
    - Were diagnosed within the past 2 years
    - Speak and understand English
    - Are able to give informed consent
    - Have internet access at home
    - Are part of a caregiver-participant pair (dyad)

    You are eligible to participate if you are a caregiver and you:
    - Are an informal caregiver (family member or friend)
    - Provide at least 30 hours of care per week to a person living with dementia
    - Speak and understand English
    - Are able to give informed consent
    - Can participate in a home setup session and follow-up interview

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to examine the effect of CARES-D for physiotherapists on learner knowledge, attitudes, and confidence in dementia. We will administer online questionnaires to practicing rehabilitation professionals in Canada who work with individuals with dementia to: 1) Assess changes in rehabilitation professionals' knowledge about dementia; 2) Evaluate shifts in attitudes toward individuals with dementia; 3) Measure improvements in confidence in managing dementia care; 4) Gather participant feedback on the CARES-D training program; 5) Compare pre- and post-training outcomes to determine the program's effectiveness.

    Eligibility Criteria

    - Are a practicing physiotherapist, occupational therapist, physiotherapy assistant, occupational therapy assistant or kinesiologist with a minimum of 6 months of experience.
    - Work with individuals living with dementia, regardless of the setting
    - Work anywhere in Canada
    - Fluent in English

    Recruitment End Date

  • Clinical Trial
    In-Person

    What is this Study about?

    We are conducting three separate studies to explore the effects of transcranial Direct Current Stimulation (tDCS) in individuals with Alzheimer’s Disease or Primary Progressive Aphasia. tDCS is a non-invasive therapy that uses low electrical currents to stimulate specific areas of the brain. Previous research has suggested that tDCS can improve symptoms such as language difficulties and may help slow the progression of Alzheimer’s.

    Our studies aim to investigate these effects in different contexts, including language therapy and overall mental abilities. Upon completion, participants will receive their study results to help guide their decisions about whether tDCS could be part of a long-term therapy plan.

    Eligibility Criteria

    Person living with Alzheimer's disease

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    The study involves a primary session of paper-and-pencil tasks, and a second session of a computer task, while your heart rate and brain activity is monitored. The aim of the study is to examine how signals are affected from the body to the brain.

    Eligibility Criteria

    - You are between the ages of 18-30 or 60-85

    - Free from conditions (other than amnestic mild cognitive impairment (aMCI)) which affect cognition or cardiac health

    - Fluent in the English language

    - Have normal or corrected-to-normal vision

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    By understanding the perspectives of various stakeholders involved in dementia care within Ontario health teams, we aim to enhance the quality of life for individuals living with dementia in Ontario.

    Eligibility Criteria

    You are eligible to participate if you or your loved one is living with dementia and would like to share your experience so that we can act to improve the quality of care for individuals living with dementia in Ontario.

    Age criteria: 50+

     

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    In collaboration with our South Asian community collaborators, our goal is to gain an in-depth understanding of new immigrant, multigenerational, South Asian family caregiving for a relative with dementia amidst COVID-19. The goal is to inform future family-centered, healthcare interventions aimed at supporting equity deserving families during times of crisis.

    To achieve our goal, we are starting to recruit family care partners living in a multigenerational home and caring for a relative with dementia from each of the four groups of South Asian families. We will be using a multiple case study to examine new immigrant, multigenerational caregiving for a relative with dementia from the perspective of four groups of South Asian families; 1) Pakistani, 2) Bangladeshi, 3) Indian, and 4) Sri Lankan. We will also be using secondary data sources, including genograms, ecoMaps, and key documents.

    We will be conducting interviews with a family care partners from each of the four groups. Following these interviews, we will hold four focus groups with a new purposeful sample of South Asian multigenerational care partners to understand if the findings from the interviews reflect their caregiving experiences thereby increasing the reliability of the study findings.

    Eligibility Criteria

    You are eligible if

    1. You are caring for a family member or relative with memory loss or dementia

    2. You are living in a multigenerational South Asian Family

    3. You Identify with any of these four South Asian Countries: India, Pakistan, Bangladesh and Sri Lanka

    4. You live in the Greater Toronto Area (GTA)

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    Seeking individuals with mild, early-stage dementia ages 65+ to explore how they access daily information like weather forecasts and newspapers. The study aims to improve information accessibility for the dementia community. Participation involves a 60-90 minute session (in-person or via Zoom with caregiver) observing information access behaviors. Findings will guide strategies for making information more comprehensible and accessible. Participants will receive $50 for their time. This study is approved by York University’s ethics committee (#2024-176). For details, contact Dr. Somang Nam at [email protected].

    Eligibility Criteria

    Individuals diagnosed with mild, early-stage dementia.
    Caregivers may participate to support individuals meeting the above criteria.
    Participants must be able to engage in a 60-90 minute session, either in person or via Zoom.

    Recruitment End Date