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  • Observational Study
    In-Person

    What is this Study about?

    We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.

    Eligibility Criteria

    Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Ability to speak English.

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.

    We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.

    Eligibility Criteria

    - Are between 60 and 85 years of age

    - Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s

    - Have normal vision (with visual aids, if needed) and no other serious health issues

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to explore the experiences of receiving a dementia diagnosis in northwestern Ontario healthcare systems in order to improve the diagnosis process for others who may be diagnosed in the future, and physicians/health care providers who diagnose people with dementia.

    Eligibility Criteria

    • Are practicing medicine in northwestern Ontario

    • Have experience diagnosing people with dementia

    • Have practiced for a minimum of 1 year

    • Speak English

    OR

    • Have been diagnosed with dementia between 1-5 years

    • Lived in northwestern Ontario at the time of diagnosis

    • Are currently living in northwestern Ontario

    • Speak English

    Recruitment End Date

  • Observational Study
    In-Person & Online

    What is this Study about?

    Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.

    Eligibility Criteria

    - Currently a non-medical caregiver of a dementia patient who is living at home

    - Over the age of 19

    - Able to read, write and speak English

    Exclusion Criteria

    - Caregiver of a patient who is institutionalized (e.g. living in care facility)

    - Under age of 19

    - Health Care Professionals (e.g. care aides, hired help)

    Recruitment End Date

  • Clinical Trial
    In-Person & Online

    What is this Study about?

    This study is looking for caregivers to take part in a six-week creative movement group program, which aims to improve mental well-being and resilience.

    Eligibility Criteria

    You are eligible to participate if you: identify as a primary caregiver for a family member (e.g., parent) or partner/spouse living with dementia.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to understand the needs and experiences of caregivers in managing medications for people living with dementia (PLWD) to enhance future resources. In stage one, caregivers of PLWD will be interviewed to gain insights into their needs and preferences for resources. In stage two, healthcare providers from various backgrounds and settings will be interviewed to understand how they support medication management for PLWD.

    By understanding caregivers' experiences and needs in medication management, this study strives to contribute to the development of improved resources for caregivers. Ultimately, improving medication management practices has the potential to enhance the quality of life and health outcomes for both PLWD and their caregivers. By empowering caregivers with effective tools and resources, we contribute not only to the well-being of individual caregivers and care recipients but also to the broader societal goal of fostering a supportive and sustainable healthcare system for those affected by dementia.

    Eligibility Criteria

    You are eligible to participate if you are:

    - An caregiver who provides informal, unpaid care to a friend or family member diagnosed with any form of dementia

    - English speaking

    - Live in Ontario as their primary residence

    - Support in medication management activities weekly for at least 2 months. Examples of medication management activities include but are not limited to obtaining medications from the pharmacy, preparing and administering medications, and monitoring for side effects

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.

    Eligibility Criteria

    - Are a person living with dementia who is still driving or has stopped driving within the past 2 years

    - Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years

    - Are a healthcare provider who cares for people living with dementia

    - Ability to speak English

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.

    Eligibility Criteria

    - Providing informal and unpaid care (e.g., spouses, children) for people living with dementia

    - Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia

    - Own a smartphone (e.g., iPhone, Android)

    - Not currently using a mobile app created for caregivers

    - Ability to speak English

    Recruitment End Date