The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
This study is a pre-screening process used to assess participants' potential eligibility for Roche interventional Alzheimer's disease studies.
Male or female participants aged 50 years of age to 90.
Report of objective or subjective memory concerns (by the participant and/or their informant) within the last year with or without a previous clinical diagnosis of MCI or dementia due to AD.
The purpose of this study is to find out whether treatment with VHB937 is safe and beneficial in people with early Alzheimer's disease. The study will evaluate the safety of VHB937, as well as its effects on memory and other thinking abilities, on daily activities, and on changes in the brain. The study will also observe and measure how VHB937 is processed by the body and how the body responds to it.
Official Title
Male or female participants aged 50 years of age to 85.
Must have a study partner
Diagnosis of Mild Cognitive Impairment (MCI) due to AD or mild AD
This is an 8-week randomized controlled trial (RCT) assessing the feasibility and efficacy of an online mindfulness based mental health intervention for primary caregivers of individuals with dementia. The participants will be randomized into two groups: The Mind-AID Program: An online, mindfulness-based intervention focused on reducing repetitive negative thoughts and improving psychological well-being. The Educational Workshop for Caregivers (Control Group): A series of online educational resources providing valuable information and strategies for managing the caregiving role.
You are eligible to participate if you are: 1.18 years or older. 2.Living in Canada. 3.Fluent in English or French. 4.Have access to a computer and internet. 5.A primary caregiver [ This includes but is not limited to spouses, children, siblings, or other family members, as well as non-family members who serve as the primary caregiver.] to a person living with Alzheimer’s disease and related dementias (ADRD). 6.Experiencing elevated levels of rumination and/or worry. 7. Willing to be randomized into one of the study groups (mindfulness-based intervention or control).
This research study focuses on resilience, defined as a trajectory in which an individual can not only adapt but enhance and grow in challenging circumstances. This research aims to: 1) explore resilience-related behaviours in the context of informal Plwd caregiving by examining which behaviours are related to resiliency and how these behaviours are meaningful to caregivers and 2) determine the role of environmental and individual factors in resiliency of caregivers of Plwd. I gave begun the first part of this study, will involved forming a caregiver research partner team to help to identify potential behaviours, characteristics and resources that promote resiliency in caregivers. They have worked with me in further developing research questions and methodology for a large-scale survey study, which I am recruiting for now. Choice of survey measures will be guided by both previous literature and research partner input. This research also includes a cognitive component in order to ascertain the role of cognitive abilities in resiliency. The results of this research will assist in determining the most appropriate social and community supports for caregivers of Plwd and the individual, cognitive, psychological, and social factors that need to be considered when determining suitability between specific supports and individual caregivers. Improving supports for caregivers will improve both caregiver and PlwD health and well-being, and allow Plwd to live at home for longer.
- You are currently an unpaid caregiver for someone living with dementia in Canada
- You have been in this caregiving role for at least 1 year
- The person you care for may live with you, in their own home or in long-term care
- You must be able to complete an online questionnaire in English
- You have access to an internet connection and device
This study explores the experiences of family and friends of long-term care residents. It focuses on how they experience stress, burden, and mental health challenges, and how a single-session online Acceptance and Commitment Therapy (ACT) or educational materials may help. We will use the information gathered from questionnaires and interventions to understand the effectiveness of these supports and to develop recommendations for improving resources, strategies, and interventions to better meet the needs of family and friends, helping them manage stress and maintain wellbeing while caring for someone in long-term care.
You are eligible to participate if you:
- are at least 18 years old
- currently reside in Canada
- have a family member or friend who currently lives in long-term care
- are not currently receiving psychological treatment
The objective of this study is to better understand caregivers’ perspectives regarding the pharmacological management of the behavioral and psychological symptoms of dementia (BPSD). While current recommendations are largely based on the opinions of healthcare professionals and experts, the viewpoint of caregivers remains underexplored. By better understanding their experience, we hope to contribute to improved guidelines and care for individuals with neurocognitive disorders.
Assistive technology products are things that help you function or carry out activities more easily by yourself. Products could be any devices, equipment, instruments, or software. Examples could be mobile phone apps that provide calendar reminders, switches that turn off stoves, or walkers.
Assistive technology services are activities or resources that help you to use or maintain assistive technology products. Services refer to assessment, training, and maintenance that help with choosing, using, and repairing assistive technology products.
Getting these products and services means having to contact different organizations. If these products and services could be bundled as one unit, it may help persons with dementia get them more easily and potentially reduce costs. Right now, policymakers need more information about providing assistive technologies as bundles.
The purpose of the study is to learn about your experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles.
For persons with dementia: We would like to interview you now to understand your past and current experiences. We would also like to interview you each year for up to three years (for three interviews) to see how your experiences change over time. You may leave at any time.
For care partners: The purpose of the surveys is to learn about your views and experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles. If interested, you may also take part in longitudinal interviews (two interviews, one annually) after the initial survey in year one to see how your experiences changed over time. You may leave at any time.
For healthcare providers: The purpose of the surveys is to learn about your views and experiences with assisting persons with dementia and care partners to access and use products and services for managing dementia. This information will help us to know what should be included in bundles and how delivery may be improved. If interested, you may also take part 6 / 10 in longitudinal interviews (two interviews, one annually) after completing the initial survey in year one to see how your experiences changed over time. You may leave at any time.
People with dementia:
- Are a Canadian resident who can speak English or French
- Live at home (not care home)
- Able to respond to questions about yourself and your assistive technology product and service use
- Have a score 25 or below on the Montreal Cognitive Assessment (will be conducted by research team prior to interview)
- Able to provide consent (or assent, with a substitute decision maker providing consent)
Care partners:
- Are a Canadian resident who can speak English or French
- Family or friend who provides 5 hours or more of support a week for someone with dementia living at home (not a care home)
- Able to respond to questions about yourself and your assistive technology product and service use - Able to provide consent Healthcare providers:
- Are a Canadian resident who can speak English or French
- A healthcare provider (such as physician, nurse, therapist, social worker) who works with 8 / 10 persons with dementia
The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them.
You are eligible to participate if you are a:
a) Person living with dementia who is still driving or has stopped driving within the past 2 years
b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years
c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia
This study aims to evaluate the acceptance and usability of the GuardIO Family Care app, a mobile application designed to support community safety for individuals living with dementia or mild cognitive impairment and their care partners. The study also aims to analyze mobility patterns collected from the app to explore how mobility data can contribute to the early detection of cognitive impairment. The findings will help improve app design, inform care strategies, and support early intervention efforts for individuals living with dementia or MCI.
You are eligible to participate if you:
Are 18 years of age or older
Are living with mild cognitive impairment (MCI) or dementia, or are a care partner of someone with MCI or dementia
Are able to use a smartphone or tablet with the GuardIO app
Are willing to participate in the study activities, including using the app, completing questionnaires, and attending an optional focus group
Can understand and communicate in English (or another supported language, if applicable)
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