This study investigates the support needs and experiences of the family and friend caregivers of long-term care residents through an online questionnaire.
You are eligible to participate if you live in Canada, are over 18 years old, and have been providing unpaid care to a long-term care resident for at least 1 month.
This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.
The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).
You are eligible to complete this survey if you are 18 years of age or older and are either:
(1) A caregiver, currently providing care or have provided care recently, within the past year, to a person with a diagnosis of FTD and related disorders. This does not include formal caregivers that provide paid-care, private care services, community funded care services.
(2) A healthcare provider currently working in a primary care clinic and/or in a specialized clinic (e.g., cognitive and movement disorders clinics, memory clinic, etc.) where patients with a diagnosis of FTD and related disorders are assessed and followed clinically. This includes: physicians, nurses, social workers, occupational therapists, neuropsychologists, physiotherapist, etc.
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.
-Are between the age of 65-85
-Are concerned about your memory and other thinking abilities
-Have access to internet at home
-Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec
We are inviting adults 55+ and care partners of people living with dementia to participate in an offering of a six-session culinary nutrition education program. All program participants are invited to take part in an optional research study examining their experiences and outcomes associated with their program participation, but research participation is entirely voluntary.
Live in Saskatchewan (priority will be given to participants living in communities within a 150 km radius of Yorkton,SK)
- Are either 55 or over OR a care partner of a person living with dementia
This study is designed to see how perception of pictures is affected by healthy aging and amnestic mild cognitive impairment. The study can be completed either in-person or online. The data gathered will be used for scientific papers and conference presentations. Participants will also be asked if they consent to having their de-identified data shared for the benefit of open science.
You are eligible to participate in this study if you are between the ages of 65 and 85, are either in good cognitive health or have been diagnosed with amnestic mild cognitive impairment (mild cognitive impairment with memory issues), and do not have other major neurological, medical, or psychiatric conditions that could affect cognition.
The aging of the Canadian population and the lack of care personnel increase the number and responsibilities of family caregivers with the elderly. By adopting the first policy recognizing caregivers in Quebec in April 2021, the Quebec government is committed to better supporting caregivers in order to lighten their burden. The time is more appropriate than ever to highlight the reality of informal support for seniors from ethnocultural communities in the context of immigration. More specifically, our study aims to identify the trajectories of caregiving within the Maghreb community. Collecting data from key people would allow us to have an external perspective on the issue studied and would enrich our understanding of the realities and experiences of caregivers in the context of immigration (case study: the North African community), of their network of support as well as the potential impact of migration trajectories and Maghrebian culture on his practice of close care.
- Be a person over 18 years old.
- Identify yourself as a person of North African origin, i.e. from Morocco, Algeria, Tunisia, Libya and Egypt.
- Be a permanent resident, Canadian citizen by naturalization. Or be born in Canada and have at least one parent born in the Maghreb (Morocco, Algeria, Tunisia, Libya, Egypt).
- Reside in Quebec
- Support an elderly relative who also lives in Quebec or have supported an elderly relative during the last five years.
Smart home technology is being adapted to support the care at home of persons with dementia (PWD). This technology has potential to reduce burden on informal carers and improve their quality of life; however, it is unknown what the desires are of informal carers with respect to the use of smart home technology. This study will interview 15 carers, to determine how smart home technology might address behavioural and safety concerns of their loved one.
You are eligible if you:
-Are an informal caretaker of a person with dementia
- live with the person with dementia, or apart
- Are able to communicate during an interview either in-person, on the phone or by videoconferencing
-Speak English and French
This study explores the experiences of people with a stroke-related communication disability in financial environments such as banks, potential challenges regarding participation in financial environments, and looks for strategies to enhance their financial inclusion.
This study will allow adults with post-stroke communication impairments to have a voice to talk about their problems and challenges in financial environments and will provide them with strategies to enhance their financial inclusion, independence, and quality of life.
• Live with stroke-related speech or communication disability,
• Have done financial activities or have been in financial places after your stroke,
• Live in Manitoba,
• Are 18 years old or more,
• Are interested in taking part in this study,
• Agree to be audio or video recorded during the study interview.