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  • Observational Study
    Online

    What is this Study about?

    Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.

    Eligibility Criteria

    have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:

    • Person living with dementia

    • Care partner

    • Alzheimer Society staff

    • First responder

    • Service provider

    • Technology developer

    • Policy maker

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.

    Eligibility Criteria

    - Providing informal and unpaid care (e.g., spouses, children) for people living with dementia

    - Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia

    - Own a smartphone (e.g., iPhone, Android)

    - Not currently using a mobile app created for caregivers

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    A dementia diagnosis impacts the cognitive, functional, and physical abilities of those diagnosed, which will influence their ability to perform activities of daily living including meal preparation and eating. Persons living with dementia can experience a range of difficulties while eating that will impact their ability to consume adequate food and fluids, which include but are not limited to swallowing, chewing, and self-feeding difficulties. Consequently, persons living with dementia are at increased risk of malnutrition and negative health outcomes. The objective of this study is to understand the experience of persons’ living with dementia or diagnosed memory problems and/or their caregivers in managing eating challenges and swallowing problems in the community.

    Eligibility Criteria

    You are eligible to participate if you:
    - Speak English
    - A person with memory problems experiencing eating challenges or swallowing problems in the community
    - OR if you are or were a caregiver to a person with memory problems with eating challenges or swallowing problems.

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    The goal of the proposed SYNERGIC-2 TRIAL (SYNchronizing Exercises, and Remedies to GaIn Cognition@home) is to evaluate cognitive improvements from personalized multidomain interventions that target multiple dementia risk factors delivered at home to older adults with Mild Cognitive Impairment (MCI).

    Eligibility Criteria

    - Aged 60-85 years.

    - Concerned about memory or thinking problems.

    - Have access to internet at home.

    - Ability to speak English.

    Recruitment End Date

  • Clinical Trial
    Online & In-Person

    What is this Study about?

    To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.

    Eligibility Criteria

    - are a primary family caregiver of a person with dementia or a related neurodegenerative disorder.

    - have access to a computer with high-speed internet; and feel comfortable using email and Zoom (a secure online meeting platform).

    - have a video camera on your device. To ensure safety of participants during the program sessions, it is important that participants turn on their video camera. Keeping the video camera on is also important to build trust within the group sessions and when interacting with the researchers.

    - are willing to be randomised to one of 3 groups, even if it is not your preferred group.

    - are able to commit to a synchronous 8-week online group-based program (described below) and complete daily prescribed daily home practices.

    - are able to commit to three assessment sessions: one baseline assessment, one post-program assessment, one 12-month follow-up assessment.

    - agree to audio recording of interview sessions and portions of the assessment that require accurate verbal data collection.

    - are able to provide blood samples, potentially after a 12-hour fast.

    - are able to travel to a LifeLabs clinic for biomarker collection.

    - agree to refrain from participating in new studies or programs during the 8-week study session.

    - meet the screening criteria during the pre-screening interview.

    - ability to speak English.

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    Researchers at the University of Waterloo are looking for individuals to participate in a research study that explores the perceptions of dementia and health-seeking behaviour amongst Arab care partners in Ontario. This study aims to understand how dementia is perceived by Arab care partners and the use of dementia-related health services and community support services.

    Sharing your experience will help us to understand 1) how dementia is perceived by Arab care partners and 2) the use of dementia-related health services and community support services.

    Eligibility Criteria

    We are looking for individuals who:

    1. Are from the Arab community AND

    2. Are a family member who cares or has cared for a person living with dementia OR Are a family member who cares or has cared for a person with memory challenges

    Interviews can be conducted in Arabic or English based on the participants' preference

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.

    Eligibility Criteria

    -Are between the age of 65-85

    -Are concerned about your memory and other thinking abilities

    -Have access to internet at home

    -Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With

    Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute

    decision-maker and how ideas about capacity, consent, and decision-making affect them.

    Interviews will be conducted with:

    - People who are facing dementia alone

    - Healthcare and social service workers

    - Substitute decision-makers for others who are not close family members or close friends

    The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to

    better support people facing dementia alone.

    Eligibility Criteria

    You are eligible to participate if you:

    - Live in Ontario or Alberta AND

    - Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are

    facing dementia alone OR

    - Are a healthcare or social service worker, or other professional who has experience trying to connect

    adult clients with a substitute decision-maker OR

    - Have experience as a substitute decision-maker for someone living with dementia who is not a close

    family member or friend

    In addition, to be eligible you must:

    - Be able to participate in an interview over the phone, on Zoom, or in-person AND

    - Understand the purpose of the study and what participation involves

    -Speak English

    Recruitment End Date