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  • Observational Study
    Online

    What is this Study about?

    Assistive technology products are things that help you function or carry out activities more easily by yourself. Products could be any devices, equipment, instruments, or software. Examples could be mobile phone apps that provide calendar reminders, switches that turn off stoves, or walkers.

    Assistive technology services are activities or resources that help you to use or maintain assistive technology products. Services refer to assessment, training, and maintenance that help with choosing, using, and repairing assistive technology products.

    Getting these products and services means having to contact different organizations. If these products and services could be bundled as one unit, it may help persons with dementia get them more easily and potentially reduce costs. Right now, policymakers need more information about providing assistive technologies as bundles.

    The purpose of the study is to learn about your experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles.

    For persons with dementia: We would like to interview you now to understand your past and current experiences. We would also like to interview you each year for up to three years (for three interviews) to see how your experiences change over time. You may leave at any time.

    For care partners: The purpose of the surveys is to learn about your views and experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles. If interested, you may also take part in longitudinal interviews (two interviews, one annually) after the initial survey in year one to see how your experiences changed over time. You may leave at any time.

    For healthcare providers: The purpose of the surveys is to learn about your views and experiences with assisting persons with dementia and care partners to access and use products and services for managing dementia. This information will help us to know what should be included in bundles and how delivery may be improved. If interested, you may also take part 6 / 10 in longitudinal interviews (two interviews, one annually) after completing the initial survey in year one to see how your experiences changed over time. You may leave at any time.

    Eligibility Criteria

    People with dementia:

    - Are a Canadian resident who can speak English or French

    - Live at home (not care home)

    - Able to respond to questions about yourself and your assistive technology product and service use

    - Have a score 25 or below on the Montreal Cognitive Assessment (will be conducted by research team prior to interview)

    - Able to provide consent (or assent, with a substitute decision maker providing consent)

    Care partners:

    - Are a Canadian resident who can speak English or French

    - Family or friend who provides 5 hours or more of support a week for someone with dementia living at home (not a care home)

    - Able to respond to questions about yourself and your assistive technology product and service use - Able to provide consent Healthcare providers:

    - Are a Canadian resident who can speak English or French

    - A healthcare provider (such as physician, nurse, therapist, social worker) who works with 8 / 10 persons with dementia

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

    Eligibility Criteria

    You are eligible to participate if you are a: 

    a) Person living with dementia who is still driving or has stopped driving within the past 2 years 

    b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years 

    c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia 

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease. Compassionate palliative care is essential for individuals with dementia and their caregivers. However, many families living in rural settings cannot access palliative care unless it is through virtual methods. This study aims to address these challenges by involving caregivers and healthcare professionals to co-design virtual palliative care support.

    Eligibility Criteria

    1. Are a family member/caregiver providing care to a loved one with terminal dementia.

    2. Healthcare providers who medically practice in rural Ontario, focused on delivering palliative care to family caregivers of individuals with dementia

    Recruitment End Date

  • Observational Study
    In person and online

    What is this Study about?

    Help Us Improve Support for Alzheimer’s Caregivers

    We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease.

    What is this study about?
    We know that caregiving is a journey that changes over time, but many caregivers don’t have access to tools or services that meet their evolving needs. This study aims to change that by bringing together caregivers and professionals to co-create practical resources and tools that support caregivers through each stage of the disease.

    What will participation involve?
    Participation will mostly take place virtually and includes online surveys, focus groups, and/or one-on-one interviews through secure platforms like Zoom or Microsoft Teams. You’ll be asked about your experiences with caregiving and the services available to you. Later, we’ll host in-person co-design sessions to work together on building useful tools and guidance for caregivers.

    Why join?
    By participating, you’ll have the chance to reflect on your experience, identify gaps in current services, and help shape resources that better support caregivers like you. You may also learn about services you didn’t know existed. Your input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s.

    Eligibility Criteria

    1. Caregivers who are providing care to a loved one with Alzheimer’s disease or related dementias, particularly those in the following caregiving stages: o Monitoring initial symptoms o Navigating diagnosis o Assisting with instrumental and basic activities of daily living o Preparing for the future

    o Monitoring initial symptoms

    o Navigating diagnosis

    o Assisting with instrumental and basic activities of daily living

    o Preparing for the future

    2. Service providers (e.g., healthcare professionals, social workers, home care aides) who deliver Alzheimer’s related care or services to individuals in these caregiving stages

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to examine the effect of CARES-D for physiotherapists on learner knowledge, attitudes, and confidence in dementia. We will administer online questionnaires to practicing rehabilitation professionals in Canada who work with individuals with dementia to: 1) Assess changes in rehabilitation professionals' knowledge about dementia; 2) Evaluate shifts in attitudes toward individuals with dementia; 3) Measure improvements in confidence in managing dementia care; 4) Gather participant feedback on the CARES-D training program; 5) Compare pre- and post-training outcomes to determine the program's effectiveness.

    Eligibility Criteria

    - Are a practicing physiotherapist, occupational therapist, physiotherapy assistant, occupational therapy assistant or kinesiologist with a minimum of 6 months of experience.
    - Work with individuals living with dementia, regardless of the setting
    - Work anywhere in Canada
    - Fluent in English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date