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  • Observational Study
    Online

    Physical Activity, Social Support, and the Effects of Dementia Caregiving: A Scoping Review

    What is this Study about?

    The goal of the first study of my PhD is to confirm if the results of the recent scoping review by O'Neil, Fletcher & Bryden are consistent with the lived experiences of caregivers/care partners and community program providers with respect to physical activity and/or social support.

    Implications for this research include:

    ~ Provide information regarding the effects of physical activity and social support on the health of dementia caregivers/care partners

    ~ Serve as the foundation for the development of future resources to help sustain the health and well-being of this population.

     

    The findings from this study will be collated into various research papers, presentations and posters. Further, the results will be used to help guide the direction of the primary researchers other projects within her PhD.

    Eligibility Criteria

    For community program providers to participate they must:

    ~Must be involved (i.e., within designing, implementing, or evaluating) programs for persons living with dementia and/or their family caregivers/care partners

    ~Be 18 years or older

    ~Understand the elements that comprise program(s) designed for persons living with dementia and/or their family caregivers/care partners. 

    ~Live and work within Ontario

    ~Speak English

     

    For caregivers to participate they must:

    ~Be a family member or friend providing care to a person living with dementia OR were a caregiver to a person living with dementia within the past six months

    ~Be 18 year or older

    ~Be in some form of contact with the person living with dementia weekly

    ~Participate in some form of physical activity or social support weekly

    ~Live within Ontario

    ~Speak English

    Recruitment End Date

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  • Observational Study
    Online

    CAN-PROTECT

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

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  • Observational Study
    Online

    Community Alert Systems for Missing Persons with Dementia: Policy to Implementation

    What is this Study about?

    Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.

    Eligibility Criteria

    have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:

    • Person living with dementia

    • Care partner

    • Alzheimer Society staff

    • First responder

    • Service provider

    • Technology developer

    • Policy maker

    Recruitment End Date

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  • Observational Study
    Online

    Diversifying Research through the Experiences & Attitudes of Minorities (DREAM) – Survey

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

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  • Observational Study
    Online & In-Person

    Decision-Making & Ethics of Substitution for People Living With Dementia Going It Alone

    What is this Study about?

    This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With

    Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute

    decision-maker and how ideas about capacity, consent, and decision-making affect them.

    Interviews will be conducted with:

    - People who are facing dementia alone

    - Healthcare and social service workers

    - Substitute decision-makers for others who are not close family members or close friends

    The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to

    better support people facing dementia alone.

    Eligibility Criteria

    You are eligible to participate if you:

    - Live in Ontario or Alberta AND

    - Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are

    facing dementia alone OR

    - Are a healthcare or social service worker, or other professional who has experience trying to connect

    adult clients with a substitute decision-maker OR

    - Have experience as a substitute decision-maker for someone living with dementia who is not a close

    family member or friend

    In addition, to be eligible you must:

    - Be able to participate in an interview over the phone, on Zoom, or in-person AND

    - Understand the purpose of the study and what participation involves

    -Speak English

    Recruitment End Date

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