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  • Observational Study
    In-person & Online

    Knowledge Synthesis of Group Exercise Programs for People Living with Dementia

    What is this Study about?

    Arksey and O’Malley’s framework for conducting scoping reviews includes a consultative exercise with people who have lived experiences related to the topic of the literature. Such consultations, in the case of this study being in the form of a focus group, help ensure the findings remain grounded in peoples’ everyday realities, and as such the results of the review are more useful for informing policy and practice. Moreover, focus group participants can share what gaps they identify in the literature based on their lived experiences, which can inform future research that better addresses their needs and circumstances. Therefore, after synthesizing the literature for each topic, we are host an approximately one-hour long focus group for people who have participated in exercise programs for people living with dementia (exercise leaders, carers, and people living with dementia) who will share their thoughts on the literature.

    Eligibility Criteria

    • Living with dementia, a family care partner of someone living with dementia, or a professional who works to support people living with dementia.

    • Able to read, write, and speak in English.

    Recruitment End Date

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  • Observational Study
    In person & Online

    Assessing the Impact of Day programs on individuals living with Dementia and their family/friend Caregivers

    What is this Study about?

    This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

    Eligibility Criteria

    You are eligible to participate if you:

    • Are an older adult living with dementia who attends or does not attend a day program

    • You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program

    • Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)

    • Are able to take part in a conversation or complete surveys, with support if needed

    Recruitment End Date

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  • Observational Study
    Online

    CAN-PROTECT

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

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