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  • Observational Study
    In-Person & Online

    What is this Study about?

    Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.

    Eligibility Criteria

    - Currently a non-medical caregiver of a dementia patient who is living at home

    - Over the age of 19

    - Able to read, write and speak English

    Exclusion Criteria

    - Caregiver of a patient who is institutionalized (e.g. living in care facility)

    - Under age of 19

    - Health Care Professionals (e.g. care aides, hired help)

    Recruitment End Date

  • Clinical Trial
    In-Person & Online

    What is this Study about?

    This study is looking for caregivers to take part in a six-week creative movement group program, which aims to improve mental well-being and resilience.

    Eligibility Criteria

    You are eligible to participate if you: identify as a primary caregiver for a family member (e.g., parent) or partner/spouse living with dementia.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.

    Eligibility Criteria

    - Providing informal and unpaid care (e.g., spouses, children) for people living with dementia

    - Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia

    - Own a smartphone (e.g., iPhone, Android)

    - Not currently using a mobile app created for caregivers

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

  • Clinical Trial
    Online & In-Person

    What is this Study about?

    To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.

    Eligibility Criteria

    - are a primary family caregiver of a person with dementia or a related neurodegenerative disorder.

    - have access to a computer with high-speed internet; and feel comfortable using email and Zoom (a secure online meeting platform).

    - have a video camera on your device. To ensure safety of participants during the program sessions, it is important that participants turn on their video camera. Keeping the video camera on is also important to build trust within the group sessions and when interacting with the researchers.

    - are willing to be randomised to one of 3 groups, even if it is not your preferred group.

    - are able to commit to a synchronous 8-week online group-based program (described below) and complete daily prescribed daily home practices.

    - are able to commit to three assessment sessions: one baseline assessment, one post-program assessment, one 12-month follow-up assessment.

    - agree to audio recording of interview sessions and portions of the assessment that require accurate verbal data collection.

    - are able to provide blood samples, potentially after a 12-hour fast.

    - are able to travel to a LifeLabs clinic for biomarker collection.

    - agree to refrain from participating in new studies or programs during the 8-week study session.

    - meet the screening criteria during the pre-screening interview.

    - ability to speak English.

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    Researchers at the University of Waterloo are looking for individuals to participate in a research study that explores the perceptions of dementia and health-seeking behaviour amongst Arab care partners in Ontario. This study aims to understand how dementia is perceived by Arab care partners and the use of dementia-related health services and community support services.

    Sharing your experience will help us to understand 1) how dementia is perceived by Arab care partners and 2) the use of dementia-related health services and community support services.

    Eligibility Criteria

    We are looking for individuals who:

    1. Are from the Arab community AND

    2. Are a family member who cares or has cared for a person living with dementia OR Are a family member who cares or has cared for a person with memory challenges

    Interviews can be conducted in Arabic or English based on the participants' preference

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.

    The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).

    Eligibility Criteria

    You are eligible to complete this survey if you are 18 years of age or older and are either:

    (1) A caregiver, currently providing care or have provided care recently, within the past year, to a person with a diagnosis of FTD and related disorders. This does not include formal caregivers that provide paid-care, private care services, community funded care services.

    (2) A healthcare provider currently working in a primary care clinic and/or in a specialized clinic (e.g., cognitive and movement disorders clinics, memory clinic, etc.) where patients with a diagnosis of FTD and related disorders are assessed and followed clinically. This includes: physicians, nurses, social workers, occupational therapists, neuropsychologists, physiotherapist, etc.

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.

    Eligibility Criteria

    -Are between the age of 65-85

    -Are concerned about your memory and other thinking abilities

    -Have access to internet at home

    -Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec

    Recruitment End Date