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  • Observational Study
    Online

    What is this Study about?

    In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.

    Eligibility Criteria

    -Identify as an individual living with dementia

    -Identify as a care partner

    -Are over the age of 19

    -Have posted on social media about living with dementia or being a care partner

    -Speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This is the first part of a larger study focused on 50 couples. It builds on the findings of recent scientific studies and will determine if there is a difference in gut bacterial composition due to family history or inherited genetics. Live-in partners will serve as the control group. Participants provide a single saliva sample and a small amount of feces using a simple collection device. Participant-specific genetic information can be returned to participants if desired.

    Eligibility Criteria

    1. have a parent with Alzheimer's Disease and 2. have a live-in partner who has no family history of cognitive impairment. 3. age 50-75

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.

    Eligibility Criteria

    Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Ability to speak English.

    Recruitment End Date

  • Observational Study
    In-Person & Online

    What is this Study about?

    Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.

    Eligibility Criteria

    - Currently a non-medical caregiver of a dementia patient who is living at home

    - Over the age of 19

    - Able to read, write and speak English

    Exclusion Criteria

    - Caregiver of a patient who is institutionalized (e.g. living in care facility)

    - Under age of 19

    - Health Care Professionals (e.g. care aides, hired help)

    Recruitment End Date

  • Clinical Trial
    In-Person & Online

    What is this Study about?

    This study is looking for caregivers to take part in a six-week creative movement group program, which aims to improve mental well-being and resilience.

    Eligibility Criteria

    You are eligible to participate if you: identify as a primary caregiver for a family member (e.g., parent) or partner/spouse living with dementia.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.

    Eligibility Criteria

    have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:

    • Person living with dementia

    • Care partner

    • Alzheimer Society staff

    • First responder

    • Service provider

    • Technology developer

    • Policy maker

    Recruitment End Date

  • Clinical Trial
    Online

    What is this Study about?

    Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.

    Eligibility Criteria

    - Providing informal and unpaid care (e.g., spouses, children) for people living with dementia

    - Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia

    - Own a smartphone (e.g., iPhone, Android)

    - Not currently using a mobile app created for caregivers

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date