Selecting one or more of the options below will update the content below.

Show / Hide Filters
Age Group
Type of Study
Study Format
Location
Target Population
  • Observational Study
    Online

    What is this Study about?

    This study examines how Black family caregivers in the Greater Toronto Area experience and access social support while caring for a relative living with dementia. Using Straussian Grounded Theory informed by Critical Theory and Intersectionality, the research explores how factors such as race, culture, gender, and community shape caregiving experiences and support-seeking behaviours. Findings will be used to develop theory grounded in the lived experiences of Black caregivers, and to inform more culturally responsive dementia care policies, services, and supports across Canada. This study has been approved by the York University Research Ethics Board (Protocol 130, April 2026).

    Eligibility Criteria

    You are eligible to participate if you:

    • self-identify as Black (for example, African, Caribbean, Black Canadian, Afro-Latin, or another Black identity)
    • are 18 years of age or older
    • live in the Greater Toronto Area
    • provide unpaid care to a family member living with dementia
    • can speak and understand English well enough to take part in an interview

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We developed a resource to support substitute decision-makers as they work through issues related to the sexual expression of individuals living with dementia in long-term care homes. The purpose of this pilot is to evaluate and assess how the content and format of the resource is received by a sample of substitute decision-makers and longterm care staff members. Through online surveys, we will be seeking feedback related to accessibility, potential usefulness in practice, effectiveness in increasing awareness and preparedness to address issues related to sexual expression.

    Eligibility Criteria

    - are a substitute decision-maker of a person living with dementia in residential long-term care in Alberta or Ontario OR someone currently working with people living with dementia in residential long-term care in Alberta or Ontario;

    - are a person who is 18 years of age or older;

    - are a person able to read and write in English

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    The goal of this study is to investigate whether very small doses of a drug called levetiracetam (LEV) may reduce abnormal brain signaling in the brain in individuals who are at an increased risk for developing Alzheimer's Disease. Only participants who show the abnormal brain signaling on a functional MRI (fMRI) scan of the brain will be enrolled in the study. Enrolled participants will receive 4 weeks of treatment with LEV and 4 weeks of treatment with placebo (a sugar pill). The study involves cognitive testing, genetic testing, bloodwork, ECGs, questionnaires and several brain imaging scans.

    Eligibility Criteria

    • Are between 55-85 years of age

    • Have a parent or sibling with Alzheimer’s disease or with dementia that may be due to Alzheimer’s disease (even if not diagnosed as such)

    • Feel your memory is getting worse

    • Get normal scores on tests of thinking and memory (will be done as part of the study)

    • Are able to undergo brain MRI scans

    • Have a study partner (friend or family member) willing to answer questionnaires about you

    • Show increased brain signaling during the screening fMRI scan (Note: We anticipate that most people who sign up for the study will NOT show the increased brain activity levels required to qualify for the study treatment)

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    We are conducting this research to learn more about family caregivers experiences and values when it comes to making care-related decisions on behalf someone with dementia at the end of life. We hope that by understanding diversity in experiences and values, we can contribute to the development of resources to support discussions with families preparing for the end of life. Results will be summarized in a Ph.D. dissertation. Additionally, results will be shared at a research conference, and maybe at one or more conferences or webinars for healthcare researchers or employees. Finally, results may be published in a journal article.

    Eligibility Criteria

    over 18 years old

    were involved in decision making for a family member or friend who died with dementia in Saskatchewan

    your family member or friend died least 3 months ago

    are comfortable speaking about your experience with your family members end of life

    can read large print statements written in English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This is an 8-week randomized controlled trial (RCT) assessing the feasibility and efficacy of an online mindfulness based mental health intervention for primary caregivers of individuals with dementia. The participants will be randomized into two groups: The Mind-AID Program: An online, mindfulness-based intervention focused on reducing repetitive negative thoughts and improving psychological well-being. The Educational Workshop for Caregivers (Control Group): A series of online educational resources providing valuable information and strategies for managing the caregiving role.

    Eligibility Criteria

    You are eligible to participate if you are: 1.18 years or older. 2.Living in Canada. 3.Fluent in English or French. 4.Have access to a computer and internet. 5.A primary caregiver [ This includes but is not limited to spouses, children, siblings, or other family members, as well as non-family members who serve as the primary caregiver.] to a person living with Alzheimer’s disease and related dementias (ADRD). 6.Experiencing elevated levels of rumination and/or worry. 7. Willing to be randomized into one of the study groups (mindfulness-based intervention or control).

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study explores the experiences of family and friends of long-term care residents. It focuses on how they experience stress, burden, and mental health challenges, and how a single-session online Acceptance and Commitment Therapy (ACT) or educational materials may help. We will use the information gathered from questionnaires and interventions to understand the effectiveness of these supports and to develop recommendations for improving resources, strategies, and interventions to better meet the needs of family and friends, helping them manage stress and maintain wellbeing while caring for someone in long-term care.

    Eligibility Criteria

    You are eligible to participate if you:

    - are at least 18 years old

    - currently reside in Canada

    - have a family member or friend who currently lives in long-term care

    - are not currently receiving psychological treatment

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study explores the experience of family and friend caregivers when they are supporting a person living with dementia to discharge from hospital including the emergency room. It focuses on how caregivers experience discharge planning processes and policies, how their perspectives and needs are considered at this key time, and the impacts upon the person they care for and themself in the 6 months after a hospital stay. We will used findings to develop recommendations to improve understanding of the role, needs and rights of caregivers as they care for people who live with dementia in the community.

    Eligibility Criteria

    Caregivers:

    - are the primary family or friend caregiver of a person living with dementia who lives/lived in the community

    - the care recipient was in hospital including the emergency room and discharged to the community within the last 3 years

    - you provided care between 0-3 years ago

    - you provided care in Ottawa or the surrounding 200 km

    - you are comfortable taking part in a 60-minute interview in English, French or in a different language (translation services are available)

    - the care recipient did not have an acute life limiting condition such as terminal cancer for the entire duration of your journey of providing care.

    Social Workers

    - are a social worker who currently or within the last 3 years worked with people living with dementia who are discharging or who discharged from a health care facility. This may include hospital and community-based social workers.

    - you work in Ottawa or the surrounding 200 km

    - you have worked a minimum of 3 months in this role

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

    Eligibility Criteria

    You are eligible to participate if you:

    • Are an older adult living with dementia who attends or does not attend a day program

    • You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program

    • Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)

    • Are able to take part in a conversation or complete surveys, with support if needed

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

    Eligibility Criteria

    You are eligible to participate if you are a: 

    a) Person living with dementia who is still driving or has stopped driving within the past 2 years 

    b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years 

    c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia 

    Recruitment End Date