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  • Observational Study
    Online

    What is this Study about?

    In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.

    Eligibility Criteria

    -Identify as an individual living with dementia

    -Identify as a care partner

    -Are over the age of 19

    -Have posted on social media about living with dementia or being a care partner

    -Speak English

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.

    Eligibility Criteria

    Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Ability to speak English.

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.

    We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.

    Eligibility Criteria

    - Are between 60 and 85 years of age

    - Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s

    - Have normal vision (with visual aids, if needed) and no other serious health issues

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to explore the experiences of receiving a dementia diagnosis in northwestern Ontario healthcare systems in order to improve the diagnosis process for others who may be diagnosed in the future, and physicians/health care providers who diagnose people with dementia.

    Eligibility Criteria

    • Are practicing medicine in northwestern Ontario

    • Have experience diagnosing people with dementia

    • Have practiced for a minimum of 1 year

    • Speak English

    OR

    • Have been diagnosed with dementia between 1-5 years

    • Lived in northwestern Ontario at the time of diagnosis

    • Are currently living in northwestern Ontario

    • Speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.

    Eligibility Criteria

    - Are a person living with dementia who is still driving or has stopped driving within the past 2 years

    - Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years

    - Are a healthcare provider who cares for people living with dementia

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.

    Eligibility Criteria

    have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:

    • Person living with dementia

    • Care partner

    • Alzheimer Society staff

    • First responder

    • Service provider

    • Technology developer

    • Policy maker

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    A dementia diagnosis impacts the cognitive, functional, and physical abilities of those diagnosed, which will influence their ability to perform activities of daily living including meal preparation and eating. Persons living with dementia can experience a range of difficulties while eating that will impact their ability to consume adequate food and fluids, which include but are not limited to swallowing, chewing, and self-feeding difficulties. Consequently, persons living with dementia are at increased risk of malnutrition and negative health outcomes. The objective of this study is to understand the experience of persons’ living with dementia or diagnosed memory problems and/or their caregivers in managing eating challenges and swallowing problems in the community.

    Eligibility Criteria

    You are eligible to participate if you:
    - Speak English
    - A person with memory problems experiencing eating challenges or swallowing problems in the community
    - OR if you are or were a caregiver to a person with memory problems with eating challenges or swallowing problems.

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Our study titled "Investigating the Role of Quantitative Susceptibility Mapping and Oxygen Extraction Fraction as Advanced Neuroimaging Biomarkers in Alzheimer's Disease" aims to develop non-invasive diagnostic biomarkers for Alzheimer's Disease (AD). We focus on evaluating the potential of QSM and OEF to differentiate between AD, Mild Cognitive Impairment (MCI), and Cognitively Unimpaired populations and to predict amyloid and tau pathology, using a Systems Biology approach. Leveraging the McGill University's TRIAD cohort, the study utilizes advanced imaging and machine learning to predict amyloid and tau presence, which could transform AD diagnostics and treatment. Methodologically, it involves preprocessing neuroimaging data and employing machine learning classifiers to analyze these features. The anticipated outcomes include validating QSM and OEF as non-invasive biomarkers for AD, establishing their correlation with amyloid and tau proteins, and developing predictive models for clinical decision-making, potentially resulting in significant advancements in AD diagnostics.

    Eligibility Criteria

    Are a member of the TRIAD cohort at McGill University, falling within one of the following categories: young control, cognitively unimpaired, mild cognitive impairment, or Alzheimer's Disease.

    Are willing and able to undergo advanced neuroimaging techniques including MRI and PET without contraindications.

    Have not had any significant neurological conditions (other than AD for the AD group) that might interfere with the results of the study.

    Have no metal implants, devices, or other conditions that may contraindicate or distort MRI imaging.

    Are not currently participating in other clinical trials or studies that involve interventions which might interfere with the results of this study.

    Are able and willing to provide informed consent for participation in the study or have a legally authorized representative who can do so.

    Do not have a history of substance abuse or other conditions that might confound the imaging and cognitive data.

    Have not undergone any significant head trauma or surgery in the past 6 months.

    Are not pregnant or planning to become pregnant during the duration of the study.

    Are willing to comply with all study-related procedures, imaging sessions, and follow-up evaluations.

    Ability to speak English and French

    Recruitment End Date