
The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
The purpose of this study is to examine the effect of CARES-D for physiotherapists on learner knowledge, attitudes, and confidence in dementia. We will administer online questionnaires to practicing rehabilitation professionals in Canada who work with individuals with dementia to: 1) Assess changes in rehabilitation professionals' knowledge about dementia; 2) Evaluate shifts in attitudes toward individuals with dementia; 3) Measure improvements in confidence in managing dementia care; 4) Gather participant feedback on the CARES-D training program; 5) Compare pre- and post-training outcomes to determine the program's effectiveness.
- Are a practicing physiotherapist, occupational therapist, physiotherapy assistant, occupational therapy assistant or kinesiologist with a minimum of 6 months of experience.
- Work with individuals living with dementia, regardless of the setting
- Work anywhere in Canada
- Fluent in English
The objective of this study is to understand: (1) what community-based interventions caregivers/care partners for persons living with young onset dementia (i.e., dementia diagnosed under the age of 65) are accessing across Southern Ontario; (2) caregivers/care partners perceptions towards the community-based interventions they have accessed; and (3) the reasons, if any, for not accessing community-based interventions.
The results of this study will be used to help inform the development and enhancement of community-based interventions for persons living with YOD and their caregivers/care partners, and is a part of my PhD dissertation.
To participate you must:
-be a family caregiver or care partner to a person living with young onset dementia OR
were a family caregiver/care partner to a person living with young onset dementia within
the past six months
-be 18 years or older
-live within Southern Ontario
Qualitative study using semi-structure interviews to gain understanding of occupational transitions of caregivers during menopause to inform increased services to meet these needs.
-Identify as a female
-Be a caregiver of a person or persons with a disability or chronic illness
-Be at menopause (defined as 1-6 years post a final menstrual cycle)
-Be willing to be audio recorded
The purpose of this study is to determine the effectiveness of DataDay, a digital self-management application, in improving the quality of life of patients and caregivers. In this respect, we aim to identify the benefits and challenges to the app’s usability and impact on health outcomes and quality of life for these individuals.
The information gathered from this study concerning the impact on patient and caregiver quality of life, as well as the feasibility and usability of the app will inform future iterations of the app.
– Are 18 years of age
– Are diagnosed with dementia (any type) or MCI (Patients can have moderate dementia insofar that they can understand and provide informed consent)
– Have the capacity to consent independently
– Are a caregiver: Must be caring for a person living with mild to moderate dementia or MCI
Please note: Access to a smartphone or tablet is not a requirement for participation. Participants may use their own device if they wish or can be supplied a tablet for the duration of the study. Access to Wi-Fi is not required.
The study involves a primary session of paper-and-pencil tasks, and a second session of a computer task, while your heart rate and brain activity is monitored. The aim of the study is to examine how signals are affected from the body to the brain.
- You are between the ages of 18-30 or 60-85
- Free from conditions (other than amnestic mild cognitive impairment (aMCI)) which affect cognition or cardiac health
- Fluent in the English language
- Have normal or corrected-to-normal vision
Increasing evidence shows that listening to music from childhood and early adulthood can help recall meaningful events from the past. Importantly, people with dementia have shown to benefit from listening to personally meaningful music, suggesting that musical memory remains preserved. However, the underlying mechanisms by which music improves memory remains unclear.
My research addresses the impact of an autobiographically salient music listening program on memory and brain activity in mild cognitive impairment. Understanding how brainwave activity in this population may differ, will help elucidate mechanisms of music listening that lead to cognitive improvements, ultimately providing insight into musical memory preservation and how it can be leveraged.
Participants will undergo cognitive testing and measure brainwave activity via EEG, a non-invasive neuroimaging method. Participants will be provided an online link (or CD if they do not have wifi) to access their personalized music playlist and will be asked to listen for two weeks at home (20 mins/day, minimum 5 days/wk). Repeated cognitive and EEG assessment will help determine changes in brain function.
- are 60 years of age and over
- have received a diagnosis of mild cognitive impairment
- are English speaking
- have a minimum of high school education
- have adequate hearing and vision
- can identify 15 English vocal/lyrical songs that are associated to your personal memories
- can commit to listening to your personal playlist (20 mins) at-home for 2 weeks (minimum 5 days/week)
By understanding the perspectives of various stakeholders involved in dementia care within Ontario health teams, we aim to enhance the quality of life for individuals living with dementia in Ontario.
You are eligible to participate if you or your loved one is living with dementia and would like to share your experience so that we can act to improve the quality of care for individuals living with dementia in Ontario.
This study consists of a 45-60 minutes virtual interview to better understand the experiences of familial caregivers of persons with dementia.
- Are 18 years of age or older
- Have been a part-time or full-time caregiver of a family member with dementia
- Speaks English
This study looks at how an at-home nature-based virtual reality (VR) program may help people living with Alzheimer’s disease manage behavioural and psychological symptoms of dementia (BPSD), such as depression. Caregivers/study partners will have the option of taking part in the study and providing feedback regarding the VR intervention. This project will explore how VR can be used as a non-pharmacological approach to prolong aging in place for individuals with BPSD, as BPSD contributes to rates of institutionalization. This will take place completely remotely, in your own home.
AD-D Participant Inclusion Criteria:
1) Clinical diagnosis of mild to early-moderate stage AD (including mixed dementia with AD) using the Diagnostic and Statistical Manual of Mental Disorders, 5th Ed. Criteria (29)
2) Age of 50 years or older
3) Medical stability to participate in the trial
4) Patient Health Questionnaire score 5-14
5) Investigator judgement on whether the participant is comfortable with technology
6) Access to WiFi and a smart device for connecting on WebEx and downloading the Fitbit and Muse applications
7) Have someone available to be present during all sessions
Caregiver Inclusion Criteria:
1) 18 years of age or older
2) Available to be present for all sessions
3) Ability to provide consent
4) Access to a smart device
Caregiver Exclusion Criteria:
1) Under 18 years of age
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