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  • Observational Study
    Online

    What is this Study about?

    In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.

    Eligibility Criteria

    -Identify as an individual living with dementia

    -Identify as a care partner

    -Are over the age of 19

    -Have posted on social media about living with dementia or being a care partner

    -Speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This is the first part of a larger study focused on 50 couples. It builds on the findings of recent scientific studies and will determine if there is a difference in gut bacterial composition due to family history or inherited genetics. Live-in partners will serve as the control group. Participants provide a single saliva sample and a small amount of feces using a simple collection device. Participant-specific genetic information can be returned to participants if desired.

    Eligibility Criteria

    1. have a parent with Alzheimer's Disease and 2. have a live-in partner who has no family history of cognitive impairment. 3. age 50-75

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The goal of the first study of my PhD is to confirm if the results of the recent scoping review by O'Neil, Fletcher & Bryden are consistent with the lived experiences of caregivers/care partners and community program providers with respect to physical activity and/or social support.

    Implications for this research include:

    ~ Provide information regarding the effects of physical activity and social support on the health of dementia caregivers/care partners

    ~ Serve as the foundation for the development of future resources to help sustain the health and well-being of this population.

     

    The findings from this study will be collated into various research papers, presentations and posters. Further, the results will be used to help guide the direction of the primary researchers other projects within her PhD.

    Eligibility Criteria

    For community program providers to participate they must:

    ~Must be involved (i.e., within designing, implementing, or evaluating) programs for persons living with dementia and/or their family caregivers/care partners

    ~Be 18 years or older

    ~Understand the elements that comprise program(s) designed for persons living with dementia and/or their family caregivers/care partners. 

    ~Live and work within Ontario

    ~Speak English

     

    For caregivers to participate they must:

    ~Be a family member or friend providing care to a person living with dementia OR were a caregiver to a person living with dementia within the past six months

    ~Be 18 year or older

    ~Be in some form of contact with the person living with dementia weekly

    ~Participate in some form of physical activity or social support weekly

    ~Live within Ontario

    ~Speak English

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.

    Eligibility Criteria

    Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Ability to speak English.

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.

    We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.

    Eligibility Criteria

    - Are between 60 and 85 years of age

    - Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s

    - Have normal vision (with visual aids, if needed) and no other serious health issues

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to explore the experiences of receiving a dementia diagnosis in northwestern Ontario healthcare systems in order to improve the diagnosis process for others who may be diagnosed in the future, and physicians/health care providers who diagnose people with dementia.

    Eligibility Criteria

    • Are practicing medicine in northwestern Ontario

    • Have experience diagnosing people with dementia

    • Have practiced for a minimum of 1 year

    • Speak English

    OR

    • Have been diagnosed with dementia between 1-5 years

    • Lived in northwestern Ontario at the time of diagnosis

    • Are currently living in northwestern Ontario

    • Speak English

    Recruitment End Date

  • Observational Study
    In-Person & Online

    What is this Study about?

    Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.

    Eligibility Criteria

    - Currently a non-medical caregiver of a dementia patient who is living at home

    - Over the age of 19

    - Able to read, write and speak English

    Exclusion Criteria

    - Caregiver of a patient who is institutionalized (e.g. living in care facility)

    - Under age of 19

    - Health Care Professionals (e.g. care aides, hired help)

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to understand the needs and experiences of caregivers in managing medications for people living with dementia (PLWD) to enhance future resources. In stage one, caregivers of PLWD will be interviewed to gain insights into their needs and preferences for resources. In stage two, healthcare providers from various backgrounds and settings will be interviewed to understand how they support medication management for PLWD.

    By understanding caregivers' experiences and needs in medication management, this study strives to contribute to the development of improved resources for caregivers. Ultimately, improving medication management practices has the potential to enhance the quality of life and health outcomes for both PLWD and their caregivers. By empowering caregivers with effective tools and resources, we contribute not only to the well-being of individual caregivers and care recipients but also to the broader societal goal of fostering a supportive and sustainable healthcare system for those affected by dementia.

    Eligibility Criteria

    You are eligible to participate if you are:

    - An caregiver who provides informal, unpaid care to a friend or family member diagnosed with any form of dementia

    - English speaking

    - Live in Ontario as their primary residence

    - Support in medication management activities weekly for at least 2 months. Examples of medication management activities include but are not limited to obtaining medications from the pharmacy, preparing and administering medications, and monitoring for side effects

    Recruitment End Date