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  • Observational Study
    Online & In-Person

    What is this Study about?

    Focus groups will discuss lived experiences making decisions about end of life nutrition care with residents living in long-term care to explore strengths or gaps in care that can be leveraged or addressed. Focus group discussions will be used to co-produce resources to support residents and family members with end of life nutrition care decision making (e.g., clinical pathways, decision-trees, patient and family education tools, etc).

    Eligibility Criteria

    - are 18 years or older at the time of the focus group

    - are a current or bereaved (minimum 3 months bereaved) caregiver of a Saskatchewan long-term care resident

    - are able to speak, read, and understand English

    - are willing and able to use Zoom

    - have access to a stable wi-fi connection

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    This study will uncover how bilingualism supports healthy cognitive aging by examining the influence of different language experiences on the timing and location of brain network activity. We will examine the timing of brain activity using electroencephalography (EEG; i.e., recordings of electrical brain activity) and the location of brain activity using magnetic resonance imaging (MRI; i.e., images of activity in different parts of the brain). Different language experience factors will additionally be explored. By measuring multiple factors (e.g., the age of second language learning, language proficiency) the effect(s) of different language experiences on the brain and cognition will become clearer.

    Eligibility Criteria

    You are eligible to participate if you:

    - are a French-English bilingual over the age of 65

    - have mild cognitive impairment

    - have Alzheimer's disease

    - are a healthy older adult (i.e., have no cognitive conditions)

     

    Please note that you do not need to be completely fluent in both English and French, just to have some familiarity, experience or training with both languages to be eligible to participate.

    Thank you for your consideration!

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    This research study examines how online search result accuracy affects people's evaluation of medical treatments, focusing on older adults with potential digital literacy challenges. Using eye-tracking, screen logging, think-aloud protocols, and interviews, the study explores how search accuracy influences judgment. The goal is to optimize trustworthy health websites and create user-friendly interfaces, enhancing health information literacy among older adults. By analyzing attention patterns, thought processes, and search result interactions, researchers aim to understand how older adults make health-related judgments online. This will inform development of search engines better suited for older adults seeking health information.

    Eligibility Criteria

    You are eligible to participate if you:

    - Are at least 60 years of age

    - Are able to speak and understand English well

    - Are able to use a computer for basic tasks (can use a mouse and keyboard)

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.

    Eligibility Criteria

    -Identify as an individual living with dementia

    -Identify as a care partner

    -Are over the age of 19

    -Have posted on social media about living with dementia or being a care partner

    -Speak English

    If you are interested in participating, please contact [email protected] or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.

    We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.

    Eligibility Criteria

    - Are between 60 and 85 years of age

    - Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s

    - Have normal vision (with visual aids, if needed) and no other serious health issues

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to understand the needs and experiences of caregivers in managing medications for people living with dementia (PLWD) to enhance future resources. In stage one, caregivers of PLWD will be interviewed to gain insights into their needs and preferences for resources. In stage two, healthcare providers from various backgrounds and settings will be interviewed to understand how they support medication management for PLWD.

    By understanding caregivers' experiences and needs in medication management, this study strives to contribute to the development of improved resources for caregivers. Ultimately, improving medication management practices has the potential to enhance the quality of life and health outcomes for both PLWD and their caregivers. By empowering caregivers with effective tools and resources, we contribute not only to the well-being of individual caregivers and care recipients but also to the broader societal goal of fostering a supportive and sustainable healthcare system for those affected by dementia.

    Eligibility Criteria

    You are eligible to participate if you are:

    - An caregiver who provides informal, unpaid care to a friend or family member diagnosed with any form of dementia

    - English speaking

    - Live in Ontario as their primary residence

    - Support in medication management activities weekly for at least 2 months. Examples of medication management activities include but are not limited to obtaining medications from the pharmacy, preparing and administering medications, and monitoring for side effects

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.

    Eligibility Criteria

    - Are a person living with dementia who is still driving or has stopped driving within the past 2 years

    - Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years

    - Are a healthcare provider who cares for people living with dementia

    - Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date