Increasing evidence shows that listening to music from childhood and early adulthood can help recall meaningful events from the past. Importantly, people with dementia have shown to benefit from listening to personally meaningful music, suggesting that musical memory remains preserved. However, the underlying mechanisms by which music improves memory remains unclear.
My research addresses the impact of an autobiographically salient music listening program on memory and brain activity in mild cognitive impairment. Understanding how brainwave activity in this population may differ, will help elucidate mechanisms of music listening that lead to cognitive improvements, ultimately providing insight into musical memory preservation and how it can be leveraged.
Participants will undergo cognitive testing and measure brainwave activity via EEG, a non-invasive neuroimaging method. Participants will be provided an online link (or CD if they do not have wifi) to access their personalized music playlist and will be asked to listen for two weeks at home (20 mins/day, minimum 5 days/wk). Repeated cognitive and EEG assessment will help determine changes in brain function.
- are 60 years of age and over
- have received a diagnosis of mild cognitive impairment; or are generally healthy
- are English speaking
- have a minimum of high school education
- have adequate hearing and vision
- can identify 15 English vocal/lyrical songs that are associated to your personal memories
- can commit to listening to your personal playlist (20 mins) at-home for 2 weeks (minimum 5 days/week)
We are currently conducting a study to better understand the experience of emerging adults caring for parents living with advanced, serious illness. This study is being conducted at the University of Toronto. This study is open to emerging adults between 18 and 29 years old, who are sufficiently fluent in English, live in Canada, and currently provide unpaid support for a parent with an incurable, terminal disease. Interested individuals will be invited to participate in a one-to-one interview lasting approximately 60 minutes. We are hoping to recruit a range of individuals with diverse experiences. Participants will receive a $20 gift card for their time.
You are eligible to participate if you are:
- Currently providing unpaid support to a parent living with an incurable, terminal medical condition
- 18 to 29 years old
- Fluent in English
- Living in Canada
This survey is looking to learn more about well-being and chronic pain in adults aged 60 years and older living in Canada. We hope to better understand the elevated well-being experienced by older adults despite their levels of chronic pain, the impact of certain coping factors, and if age of onset of chronic pain influences levels of well-being.
- Are living with chronic pain (pain that persists for 3 or more months and causes significant emotional distress or physical impairment)
- Reside in Canada
- Speaks English
Persons living with dementia have a higher chance of getting lost and going missing. Alert systems such as Silver Alert programs notify the public about a missing person with cognitive impairment, thereby reducing their risk of exposure to harm. However, little is known about the concerns associated with the release of the missing individual's personal information to the public. We will explore the perspectives of stakeholders, including persons living with dementia, care partners, service providers, first responders, ethicists, lawyers/legal practitioners, technology developers and policy makers on the ethical and legal issues associated with the release of personal information in alert systems. Research findings will be used to inform policy and future implementation of alert systems in Canada.
You are eligible to participate if you have experience with public alert systems to locate missing persons with dementia and are a/an:
• Person living with dementia
• Care partner
• First responder
• Service provider
• Expert in law, ethics, or policy (lawyer, ethicist, and policy maker)
• English speaker
The aim of our study is to better understand whether certain lifestyle factors (such as physical activity and hearing) are related to early changes in memory and thinking abilities in older adults. We are especially interested in enrolling individuals who are South Asian or East Asian, because little research has focused on brain health in Canadians of diverse racial/ethnic backgrounds.
By participating, you will help us better understand how lifestyle factors are related to memory and thinking changes in adults from diverse communities. We hope that this will lead to improved prevention and early intervention strategies for dementia.
You are eligible to participate if you…
- Are 55-85 years old
- Have no major medical or psychiatric diagnoses
- Are comfortable speaking and reading English
- Are able to undergo an MRI scan
Eligibility is dependent on an additional conversation with the study team.
People with dementia are at risk of falling due to poor balance and fear of falling. Active video games (games played by moving) could help by providing exercise to people with dementia. However, there are no user-friendly active video games for this population.
You are invited to take part in a research study looking to develop and test an active video game for people with dementia. You will be asked questions about: (a) your experiences caring for a person with dementia; (b) falls, fear of falling, and balance/mobility issues in dementia; and (c) your input on the game's initial design.
You are eligible to participate in this study if you:
(a) live in Canada;
(b) speak English; and
(c) are a family caregiver for a person living with dementia.
The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.
Meet the following criteria for Phase 1:
Person living with dementia:
(a) aged 40 years or older with a diagnosis of dementia; and
(b) currently living in Canada.
Family or friend caregiver:
(a) aged 18 years or older and with experience in the last five years providing physical, emotional, and/or psychological support for a family member or friend living with dementia at home or in long-term care;
(b) currently living in Canada
Meet the following criteria for Phase 2:
Family or friend caregiver:
(a) aged 18 years or older and currently providing physical, emotional, and/or psychological support for a family member or friend with dementia at home or in long-term care;
(b) currently providing at least four hours of support a week for a person living with dementia; and
(c) currently living in Canada.
(d) must speak English
This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With
Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute
decision-maker and how ideas about capacity, consent, and decision-making affect them.
Interviews will be conducted with:
- People who are facing dementia alone
- Healthcare and social service workers
- Substitute decision-makers for others who are not close family members or close friends
The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to
better support people facing dementia alone.
You are eligible to participate if you:
- Live in Ontario or Alberta AND
- Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are
facing dementia alone OR
- Are a healthcare or social service worker, or other professional who has experience trying to connect
adult clients with a substitute decision-maker OR
- Have experience as a substitute decision-maker for someone living with dementia who is not a close
family member or friend
In addition, to be eligible you must:
- Be able to participate in an interview over the phone, on Zoom, or in-person AND
- Understand the purpose of the study and what participation involves
The aim of this study is to develop a new psychological questionnaire that measures compassion fatigue – emotional and physical exhaustion that involves a decreased ability to experience empathy and compassion for others – and captures experiences unique to individuals acting as caregivers for their family members who suffer from dementia. The results of this study will be disseminated through scientific publications and conference presentations.
You are eligible to participate if you must:
• Be older than 18 years old
• Be a part- or full-time caregiver for a family member diagnosed with dementia.
•Must speak English