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  • Observational Study
    In-Person & Online

    What is this Study about?

    Dementia Friendly Communities is a community-based action research study that will engage directly with people with dementia who live independently. The goal of this study is to develop an in-depth understanding of the community-related needs of people with dementia who live independently, and to explain and demonstrate how communities can be dementia friendly, and support social inclusion and wellbeing.

    Eligibility Criteria

    You are eligible to participate if you:

    - identify as someone living with dementia or memory impairment

    - live independently in the community setting (ie: alone in your own home)

    - can communicate in English

    - are able and willing to participate as a member of the Action Group.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are looking to create an online community of caregiving peers where the focus is on recording and sharing personal audio diaries and stories of caregiving. Caregivers and their partners will be asked to record regular audio diaries of their thoughts and experiences on dementia caregiving. Caregivers will then share some of these stories in facilitated small group discussions with a group of peers. Some of the themes and stories that emerge will be highlighted in a dementia caregiver podcast to share insights with the broader community.

    Eligibility Criteria

    Are a current unpaid caregiver to a family member/friend with physician-diagnosed dementia AND you are living with your respective care recipient

    Are a person living with any type of dementia (e.g., Alzheimer's, vascular, etc.) and with any stage of dementia (e.g., newly diagnosed, moderate, long-term advanced dementia)

    Ability to speak English

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Our overall goal is to improve the surgical experience for older adults with cognitive decline, including people with Alzheimer's and related dementias, their families, and caregivers.

    The aim of this study is to understand and describe the experiences of patients, families, and healthcare providers with postoperative delirium (delirium after surgery), and to identify strategies to support patient and family centered care for patients with postoperative delirium. We will conduct interviews with patients, families, and healthcare providers to describe their experiences with postoperative delirium.

    Our findings will be used to inform the development of a strategy for reducing delirium after surgery.

    Eligibility Criteria

    1) are a patient aged over 65 years who has experienced postoperative delirium (delirium after surgery), or

    2) are a caregiver/family member of a person who has experienced postoperative delirium (delirium after surgery)

    Ability to speak English

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With

    Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute

    decision-maker and how ideas about capacity, consent, and decision-making affect them.

    Interviews will be conducted with:

    - People who are facing dementia alone

    - Healthcare and social service workers

    - Substitute decision-makers for others who are not close family members or close friends

    The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to

    better support people facing dementia alone.

    Eligibility Criteria

    You are eligible to participate if you:

    - Live in Ontario or Alberta AND

    - Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are

    facing dementia alone OR

    - Are a healthcare or social service worker, or other professional who has experience trying to connect

    adult clients with a substitute decision-maker OR

    - Have experience as a substitute decision-maker for someone living with dementia who is not a close

    family member or friend

    In addition, to be eligible you must:

    - Be able to participate in an interview over the phone, on Zoom, or in-person AND

    - Understand the purpose of the study and what participation involves

    -Speak English

    Recruitment End Date

  • Observational Study
    In-Person and Online

    What is this Study about?

    VRx@Home is a 5-week virtual reality at-home intervention with the goal to explore whether virtual reality experiences can enhance communication between persons living with dementia and their care partners. We also aim to explore how a head-mounted VR system, which delivers a fully immersive experience compares to a Tablet-based technology.

    Eligibility Criteria

    • Persons living with mild-to-moderate dementia who are living at home
    • Person living with dementia has no history of stroke, bypass surgery, or seizure disorders
    • A friend/family care partner who speaks and understands English and is willing to also participate in the intervention
    • Resides in Greater Toronto Area (Toronto, Peel, Halton, York, and Durham regions)
    • Individuals who speak English

    Recruitment End Date