The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
In collaboration with our South Asian community collaborators, our goal is to gain an in-depth understanding of new immigrant, multigenerational, South Asian family caregiving for a relative with dementia amidst COVID-19. The goal is to inform future family-centered, healthcare interventions aimed at supporting equity deserving families during times of crisis.
To achieve our goal, we are starting to recruit family care partners living in a multigenerational home and caring for a relative with dementia from each of the four groups of South Asian families. We will be using a multiple case study to examine new immigrant, multigenerational caregiving for a relative with dementia from the perspective of four groups of South Asian families; 1) Pakistani, 2) Bangladeshi, 3) Indian, and 4) Sri Lankan. We will also be using secondary data sources, including genograms, ecoMaps, and key documents.
We will be conducting interviews with a family care partners from each of the four groups. Following these interviews, we will hold four focus groups with a new purposeful sample of South Asian multigenerational care partners to understand if the findings from the interviews reflect their caregiving experiences thereby increasing the reliability of the study findings.
You are eligible if
1. You are caring for a family member or relative with memory loss or dementia
2. You are living in a multigenerational South Asian Family
3. You Identify with any of these four South Asian Countries: India, Pakistan, Bangladesh and Sri Lanka
4. You live in the Greater Toronto Area (GTA)
The purpose of this study is to assess the effectiveness, safety, and tolerability of BMS-986446 an Anti-MTBR Tau Monoclonal Antibody in participants with Early Alzheimer's Disease.
Male or female participants aged 50 to 80 years of age
MCI or Mild AD at Screening
Must have a study partner
The primary purpose of this study is to evaluate the efficacy of sabirnetug infusions administered once every four weeks (Q4W) in slowing cognitive and functional decline as compared to placebo in participants with early Alzheimer's disease.
Male or female participants aged 50 to 90 years of age
MCI due AD or probable AD.
Must have a study partner
This AR1001-ADP3-US01 protocol is a double-blind, randomized, placebo-controlled, multi- center, parallel-group comparison pivotal Phase 3 study to evaluate the efficacy and safety of AR1001 for the treatment of participants with early AD.
Male or female participants aged 55 to 90 years of age
MCI or Mild AD at Screening
Must have a study partner
The aim of this study is to develop a large, ethically sourced, and diverse database of voice recordings to determine whether voice has biomarkers for particular disease categories, including neurological and neurodegenerative conditions. The data that is collected will be used to develop a full open-access database to fuel artificial intelligence research related to voice.
- Are between the ages of 44-85
- Are able to read, write, speak, and understand English
- Are diagnosed with one of the following conditions:
- Consent to provide a voice/speech sample
This study examines how people with dementia or MCI perform household tasks, focusing on when they seek support, and which prompts help them complete tasks. The findings will help develop technologies to assist them in completing tasks more independently and safely.
You are eligible to participate if you are:
• An older adult aged 60-85
• Fluent in English
• Diagnosed with dementia or MCI
• Enrolled in outpatient care
McMaster University, in partnership with Ressam Gardens Memory Care Community, is conducting a study on the effects of brain stimulation in individuals aged 50 and older with dementia or memory loss. The research focuses on using repetitive transcranial magnetic stimulation (rTMS), a non-invasive technique that delivers magnetic pulses to the brain, to enhance cognitive function and balance. The goal is to extend the positive effects of brain stimulation in improving cognition and balance in individuals with dementia.
You are eligible to participate if you…
1.) Diagnosed with Dementia and/or memory loss by a clinician
2.) Exhibit adequate oral communication skills and cognitive function sufficient to obtain a score ranging between 10-27 on the Mini-Mental State Exam
3.) Walk or stand with or without personnel or assistive devices
4.) Individuals must be greater than or equal to 50 years of age
Focus groups will discuss lived experiences making decisions about end of life nutrition care with residents living in long-term care to explore strengths or gaps in care that can be leveraged or addressed. Focus group discussions will be used to co-produce resources to support residents and family members with end of life nutrition care decision making (e.g., clinical pathways, decision-trees, patient and family education tools, etc).
- are 18 years or older at the time of the focus group
- are a current or bereaved (minimum 3 months bereaved) caregiver of a Saskatchewan long-term care resident
- are able to speak, read, and understand English
- are willing and able to use Zoom
- have access to a stable wi-fi connection
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
If you are interested in participating, please contact [email protected] or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi
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