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  • Observational Study
    Online

    What is this Study about?

    Have you ever wondered how people feel and think about caregiving for older adults? Our study explores these beliefs and attitudes about unpaid (informal) caregiving for older adults in Canada. Participants will answer questions in an Online Survey that takes approximately 30 minutes.

    The data will be analyzed and published in aggregated forms of anonymized data. The findings will help to understand and highlight the Canadian society’s beliefs and attitudes about informal care for older adults and provide a new basis for improving support for caregivers and the people they care for.

    Eligibility Criteria

    - Are between 18 and 95 years of age

    - Are currently an unpaid caregiver to a relative or friend who is aged 60 years or older

    - Have been providing care or support for at least 6 months or longer

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The goal of this study is to explore the experiences of caregivers who are managing both their caregiving responsibilities and their own health needs, in order to better understand the challenges they face and to identify ways to improve support for them. The findings of this study are expected to help inform policy formation, intervention planning and design that addresses the unique needs of ill-caregivers. The knowledge generated through this study will enhance caregivers’ capacity and sustainability, thereby supporting their ability to deliver high-quality care to older adults while maintaining their essential role within the healthcare system.

    Eligibility Criteria

    - are 18 years or older

    - are currently providing care to an older adult (age 60+) with a chronic illness (e.g., heart disease, diabetes, cancer), while also managing your own health conditions (e.g., chronic illness, mental health concerns)

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease. Compassionate palliative care is essential for individuals with dementia and their caregivers. However, many families living in rural settings cannot access palliative care unless it is through virtual methods. This study aims to address these challenges by involving caregivers and healthcare professionals to co-design virtual palliative care support.

    Eligibility Criteria

    1. Are a family member/caregiver providing care to a loved one with terminal dementia.

    2. Healthcare providers who medically practice in rural Ontario, focused on delivering palliative care to family caregivers of individuals with dementia

    Recruitment End Date

  • Observational Study
    online

    What is this Study about?

    In Canada, 61% of people living with dementia (Plwd) live at home, with 87% of those living with an informal caregiver. Compared to caregivers of other older adults without dementia, caregivers of Plwd report higher levels of stress. However, interventions addressing caregiver stress directly have not been very effective. Newer research focuses on resilience, defined as a trajectory in which an individual can not only adapt but enhance and grow in challenging circumstances.

    This research addresses several questions. We will investigate what resilience looks like for informal caregivers of Plwd, and what behaviours lead to and promote resiliency. We will also examine what the role of environmental (e.g., living arrangements) and individual (e.g., personality) factors are on caregiver resiliency . These studies will determine what factors influence a caregiver’s ability to participate in behaviours that promote resiliency.

    I will form a caregiver research partner team who will participate in further developing research questions for a large-scale online survey study (200-250 people). Choice of survey measures will be guided by both existing research and research partners.

    The results of this research will reveal what behaviours allow caregivers of Plwd to engage in resiliency .For example, maybe it may be the case that taking time for self-reflection allows for caregivers to be ‘resilient’, meaning they are able to grow and thrive, and don’t experience high levels of stress. Knowing these behaviours and strategies, as well as the role of environmental factors, will empower caregivers to
    move towards resilience and decrease stress.

    Eligibility Criteria

    You are eligible to participate if you...
    - Are either currently caregiving for a Plwd (with a diagnosis) or have recently been caring for a Plwd (in the past year) for at least one year
    - Are fluent in English
    - Are living and caring for someone in Canada
    - Are an informal (i.e., unpaid) caregiver
    - Have access to technology to join Zoom meetings (i.e., smartphone, tablet or computer)

    Recruitment End Date

  • Observational Study
    In person

    What is this Study about?

    This study explores Deep Brain Stimulation (DBS) as a potential treatment for mild Alzheimer’s disease (AD). In this study, the mild electrical stimulation is delivered to a part of the brain called the Pedunculopontine Nucleus (PPN), which helps regulate cognitive and sleep-related brain rhythms. The trial will recruit a small group of participants to evaluate the safety, feasibility, and preliminary efficacy of DBS-PPN in treating AD. The goal of this study is to see if targeting this part of the brain with DBS can help people living with mild AD improve their memory, thinking skills, and sleep quality.

    Eligibility Criteria

    Are 60 years or older
    -Have a diagnosis of mild Alzheimer's Disease
    -Are fluent in English
    -Have a personal caregiver willing to join the study

    Recruitment End Date

  • Observational Study
    In person and online

    What is this Study about?

    Help Us Improve Support for Alzheimer’s Caregivers

    We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease.

    What is this study about?
    We know that caregiving is a journey that changes over time, but many caregivers don’t have access to tools or services that meet their evolving needs. This study aims to change that by bringing together caregivers and professionals to co-create practical resources and tools that support caregivers through each stage of the disease.

    What will participation involve?
    Participation will mostly take place virtually and includes online surveys, focus groups, and/or one-on-one interviews through secure platforms like Zoom or Microsoft Teams. You’ll be asked about your experiences with caregiving and the services available to you. Later, we’ll host in-person co-design sessions to work together on building useful tools and guidance for caregivers.

    Why join?
    By participating, you’ll have the chance to reflect on your experience, identify gaps in current services, and help shape resources that better support caregivers like you. You may also learn about services you didn’t know existed. Your input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s.

    Eligibility Criteria

    1. Caregivers who are providing care to a loved one with Alzheimer’s disease or related dementias, particularly those in the following caregiving stages: o Monitoring initial symptoms o Navigating diagnosis o Assisting with instrumental and basic activities of daily living o Preparing for the future

    o Monitoring initial symptoms

    o Navigating diagnosis

    o Assisting with instrumental and basic activities of daily living

    o Preparing for the future

    2. Service providers (e.g., healthcare professionals, social workers, home care aides) who deliver Alzheimer’s related care or services to individuals in these caregiving stages

    Recruitment End Date

  • Observational Study
    In person and online

    What is this Study about?

    Many older adults start to experience poorer sleep quality as they age, which can be associated with worse memory and cognition. Previous studies have shown that sleep can be improved when quiet sounds are presented at the right times during slow-wave sleep. We are interested in whether we can improve sleep and associated memory and cognitive function using these sounds in older adults. Information gathered from this study will be used to inform whether quiet sounds presented during slow-wave sleep can improve sleep, memory, and cognitive function.

    Eligibility Criteria

    Are 60 and older with and without mild cognitive impairment (MCI) You must be able to read, speak, or understand English.

     If you do not have:

    1) major psychiatric or neurological disorders

    2) moderate to severe depressive or anxiety symptoms

    (3) sleep disorders

    (4) serious medical illness

    (5) known stroke or transient ischemic attack

    (6) alcohol or substance abuse

    (7) a history of seizures

    (8) chronic use of psychoactive or hypnotic medications, or use of any medication that alters sleep

    (9) significant hearing loss or hearing aid use

    (10) untreated moderate or severe sleep apnea on a home sleep apnea test.

    Participants with well-controlled sleep apnea will be eligible to participate provided they are able to use their CPAP machine or other treatment device throughout the study

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Thinking skills (also known as cognitive functions), change from younger to older adulthood. In this study we are investigating how these shifting architectures of cognition and brain function relate to one another, and how these brain and cognitive changes impact decision-making in younger and older adults.

    You may qualify to participate if you are: 1) 60 years of age or older, 2) right-handed, 3) in good health, 4) and have normal or corrected-to-normal vision. Participation will involve completing cognitive tasks, questionnaires, and non-invasive brain measurements using MRI. If you are interested in participating in this study, please contact [email protected]

    Eligibility Criteria

    You are eligible to participate if you:

    - Are aged 60 years or older

    - Are right-handed

    - Are cognitively healthy

    - Are able to come in-person to our site, located at the Montreal Neurological Institute

    - Have no metal in your body (e.g., pacemaker, metal plates, orthopedic devices, etc.)

    - Speak English or French

    Recruitment End Date

  • Observational Study
    In person and online

    What is this Study about?

    This study aims to evaluate the acceptance and usability of the GuardIO Family Care app, a mobile application designed to support community safety for individuals living with dementia or mild cognitive impairment and their care partners. The study also aims to analyze mobility patterns collected from the app to explore how mobility data can contribute to the early detection of cognitive impairment. The findings will help improve app design, inform care strategies, and support early intervention efforts for individuals living with dementia or MCI.

    Eligibility Criteria

    You are eligible to participate if you:

    Are 18 years of age or older

    Are living with mild cognitive impairment (MCI) or dementia, or are a care partner of someone with MCI or dementia

    Are able to use a smartphone or tablet with the GuardIO app

    Are willing to participate in the study activities, including using the app, completing questionnaires, and attending an optional focus group

    Can understand and communicate in English (or another supported language, if applicable)

    Recruitment End Date