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  • Observational Study
    In-Person

    What is this Study about?

    Compass-ND is a research study designed to assess individuals with different sorts of cognitive and movement changes seen in older adults. We will look at the usefulness of imaging studies, clinical assessments and biomarker tests, together with measurements of memory, thinking and daily functioning, for distinguishing these changes from each other and from healthy aging.

    Eligibility Criteria

    - are between the ages 60-90

    - have up to grade 12 education

    - have an individual (spouse, friend, or relative), called a “study partner,” who is willing to:

    - Accompany you to the study visits

    - Communicate to the study staff of changes in your health status over the period of this study

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study is part of a cognitive-behavioural therapy (CBT) research program that seeks to demonstrate the effectiveness of CBT in treating major depressive disorder (MDD) in mid-to-late life, especially as MDD is a key risk factor for Alzheimer’s disease. As inflammation has recently been linked to MDD, and CBT has been demonstrated to reduce inflammation, this study also aims to understand the role of inflammation in MDD severity and in the likelihood of response to CBT.

    Eligibility Criteria

    You are eligible to participate if you:

    1) Are between 40-75 years old, inclusive.

    2) Meet diagnosis of a major depressive episode determined through a structured clinical interview conducted by the study clinical psychologist

    3) Are currently experiencing a major depressive episode of at least 3 months in length.

    4) Have the ability to understand and comply with the requirements of the study, as judged by the investigator(s).

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study explores the experience of family and friend caregivers when they are supporting a person living with dementia to discharge from hospital including the emergency room. It focuses on how caregivers experience discharge planning processes and policies, how their perspectives and needs are considered at this key time, and the impacts upon the person they care for and themself in the 6 months after a hospital stay. We will used findings to develop recommendations to improve understanding of the role, needs and rights of caregivers as they care for people who live with dementia in the community.

    Eligibility Criteria

    Caregivers:

    - are the primary family or friend caregiver of a person living with dementia who lives/lived in the community

    - the care recipient was in hospital including the emergency room and discharged to the community within the last 3 years

    - you provided care between 0-3 years ago

    - you provided care in Ottawa or the surrounding 200 km

    - you are comfortable taking part in a 60-minute interview in English, French or in a different language (translation services are available)

    - the care recipient did not have an acute life limiting condition such as terminal cancer for the entire duration of your journey of providing care.

    Social Workers

    - are a social worker who currently or within the last 3 years worked with people living with dementia who are discharging or who discharged from a health care facility. This may include hospital and community-based social workers.

    - you work in Ottawa or the surrounding 200 km

    - you have worked a minimum of 3 months in this role

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

    Eligibility Criteria

    You are eligible to participate if you:

    • Are an older adult living with dementia who attends or does not attend a day program

    • You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program

    • Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)

    • Are able to take part in a conversation or complete surveys, with support if needed

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    Hearing loss is the third most common chronic health condition among people 65 and older and increases the risk of social isolation, depression, communication difficulties and dementia. Dementia risk may be reduced through hearing rehabilitation, and it is critical to develop tools for identifying hearing loss and its impact on communication. The Hearing and Functioning in Everyday Life Questionnaire (HFEQ) is a measure to identify hearing loss and everyday life functioning, not yet been evaluated for people with combined hearing loss and cognitive impairment. To bridge this gap, the aim is to evaluate the HFEQ for this group. The study has a cross-sectional observational study design. Adults over 60 years, with hearing loss and with and without cognitive impairment will be recruited. Data collection will include a cognitive and hearing assessment, assessment of conversation effectiveness and efficiency, hearing and general health history and five questionnaires (HFEQ, the Life-Space questionnaire, the Social Functioning in Dementia scale, and the PROMIS anxiety and depression scales).

    Eligibility Criteria

    • Are 60 years or older

    • Have hearing loss

    Experience cognitive complaints (subjective memory complaints, mild cognitive impairment, or dementia) or,

    • Experience no changes in cognitive function

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study explores the hospital experiences of people living with dementia and their care partners, focusing on how hospital and emergency department processes and interactions, often influenced by dementia stigma, influence care quality and outcomes. Insights gathered through interviews will identify barriers and opportunities to improve hospital care for this population. Findings will be used to develop recommendations that promote more responsive, inclusive, and compassionate hospital practices for people living with dementia and their care partners.

    Eligibility Criteria

    -Live with dementia or are a care partner of someone living with dementia

    -Have experience receiving care in a hospital or emergency department in Canada

    -Are comfortable participating in a one-hour interview (in English or French)

    -Can provide informed consent, proxy consent, or assent

    Recruitment End Date

  • Observational Study
    In person & Online

    What is this Study about?

    This study will assess if an in-vehicle Driving Monitoring System can identify differences in driving behaviours between older adults who are cognitively healthy, those with mild cognitive impairment, and those with mild dementia. 

    Eligibility Criteria

    Participants must:

    • Be 65 years or older.

    • Be cognitively healthy or have mild cognitive impairment or mild dementia.

    • Have a valid General class driver’s license and still driving.

    • Be fluent in English.

    • Own an insured vehicle of 1998 or newer model year.

    • Drive to at least 2 different locations per week. 

    Recruitment End Date

  • Observational Study
    In person

    What is this Study about?

    This study explores Deep Brain Stimulation (DBS) as a potential treatment for mild Alzheimer’s disease (AD). In this study, the mild electrical stimulation is delivered to a part of the brain called the Pedunculopontine Nucleus (PPN), which helps regulate cognitive and sleep-related brain rhythms. The trial will recruit a small group of participants to evaluate the safety, feasibility, and preliminary efficacy of DBS-PPN in treating AD. The goal of this study is to see if targeting this part of the brain with DBS can help people living with mild AD improve their memory, thinking skills, and sleep quality.

    Eligibility Criteria

    Are 60 years or older
    -Have a diagnosis of mild Alzheimer's Disease
    -Are fluent in English
    -Have a personal caregiver willing to join the study

    Recruitment End Date

  • Observational Study
    In person and online

    What is this Study about?

    Help Us Improve Support for Alzheimer’s Caregivers

    We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease.

    What is this study about?
    We know that caregiving is a journey that changes over time, but many caregivers don’t have access to tools or services that meet their evolving needs. This study aims to change that by bringing together caregivers and professionals to co-create practical resources and tools that support caregivers through each stage of the disease.

    What will participation involve?
    Participation will mostly take place virtually and includes online surveys, focus groups, and/or one-on-one interviews through secure platforms like Zoom or Microsoft Teams. You’ll be asked about your experiences with caregiving and the services available to you. Later, we’ll host in-person co-design sessions to work together on building useful tools and guidance for caregivers.

    Why join?
    By participating, you’ll have the chance to reflect on your experience, identify gaps in current services, and help shape resources that better support caregivers like you. You may also learn about services you didn’t know existed. Your input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s.

    Eligibility Criteria

    1. Caregivers who are providing care to a loved one with Alzheimer’s disease or related dementias, particularly those in the following caregiving stages: o Monitoring initial symptoms o Navigating diagnosis o Assisting with instrumental and basic activities of daily living o Preparing for the future

    o Monitoring initial symptoms

    o Navigating diagnosis

    o Assisting with instrumental and basic activities of daily living

    o Preparing for the future

    2. Service providers (e.g., healthcare professionals, social workers, home care aides) who deliver Alzheimer’s related care or services to individuals in these caregiving stages

    Recruitment End Date