
The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
You are invited to participate in a research study that will help us understand the current end-of-life (i.e., last months, weeks, or days) nutrition practices in long-term care (LTC) homes. Your perspective based on your experiences working in LTC can help us to develop educational resources for team members who support residents receiving palliative care at the end of their life. We hope this education will foster positive changes in attitudes and practices.
Registered nurses
Registered practical nurses
Personal support workers
Registered dietitians
Family members and friends (care partners) of residents who have received palliative care in LTC homes
This research aims to explore the perspectives of older adults living with dementia, providing a nuanced understanding of their experiences and challenges. Second, it seeks to investigate the role of physical activities in their lives, examining how engagement in such activities influences their cognitive function and mental well-being. Finally, this research aims to inform interventions and policies that can support older adults in maintaining their cognitive health and overall well-being.
The data will be used for the researcher’s master’s thesis, and for publishing peer-reviewed and non-peer reviewed articles, conference presentations, webinars, and presentations for professionals.
1.You are eligible to participate if you are a member of the Minds in Motion program.
2.You are eligible to participate if you age 65 and above.
3.You are eligible to participate if you are diagnosed with mild-to-moderate dementia.
4.You are eligible to participate if you actively engaged in some form of physical activity in addition to minds in motion physical activities (e.g. swimming, nature walks, aerobics, chair exercises).
5. You are eligible to participate if you can give informed consent.
This study aims to evaluate the acceptance and usability of the GuardIO Family Care app, a mobile application designed to support community safety for individuals living with dementia or mild cognitive impairment and their care partners. The study also aims to analyze mobility patterns collected from the app to explore how mobility data can contribute to the early detection of cognitive impairment. The findings will help improve app design, inform care strategies, and support early intervention efforts for individuals living with dementia or MCI.
You are eligible to participate if you:
Are 18 years of age or older
Are living with mild cognitive impairment (MCI) or dementia, or are a care partner of someone with MCI or dementia
Are able to use a smartphone or tablet with the GuardIO app
Are willing to participate in the study activities, including using the app, completing questionnaires, and attending an optional focus group
Can understand and communicate in English (or another supported language, if applicable)
Behavioral and emotional changes often accompany dementia and are a leading cause of long-term care placement, even more so than cognitive decline. This study is the first to explore how family caregivers make treatment decisions in response to these emotional and behavioural symptoms. We are interested in understanding whether caregivers turn to medications, consider non-pharmacological strategies such as environmental modifications, or use a combination of both. Using a quantitative behavioural economics model, this study will examine how caregivers weigh the risks and benefits of different treatment options. We are particularly interested in decision-making related to dopaminergic medications (formerly known as “antipsychotics”), which are commonly prescribed despite known risks for people with dementia. The information gathered will help guide the development of resources to better support family caregivers in navigating treatment decisions. Participation involves completing an anonymous online survey and is open to family caregivers involved in medical decision-making for a relative or close friend with dementia.
Participants will consist of caregivers of individuals with dementia who meet the following eligibility criteria:
Participants must be at least 18 years old,
Participants must be able to read English fluently,
Participants must be a family caregiver (partner, spouse, family member, or close friend) of a
person with dementia
Participants must be involved in the medical decision-making for the person with dementia,
Participants must have access to a desktop computer, laptop, or another device with a physical keyboard and mouse/trackpad,
Participants must not be a professional healthcare provider (e.g., physician, nurse, certified nursing assistant).
Additionally, the person with dementia whom they are assisting must be community-dwelling (i.e., they cannot be residing in a residential or skilled nursing facility).
Participants will take part in a one-on-one interview (in person or online) to share thoughts on reminders and changes in behavior that should be tracked by the system. Interviews will last about 60 minutes. A short follow-up (20 minutes or less) may also be requested later to provide extra feedback on the system’s design.
You are eligible to participate if you:
- Are an informal caregiver of a person living with dementia
- Provide at least 30 hours of care per week
- Speak and understand English
- Are able to give informed consent
- (Optional) The person you care for may also join if eligible
The purpose of this study is to examine the effect of CARES-D for physiotherapists on learner knowledge, attitudes, and confidence in dementia. We will administer online questionnaires to practicing rehabilitation professionals in Canada who work with individuals with dementia to: 1) Assess changes in rehabilitation professionals' knowledge about dementia; 2) Evaluate shifts in attitudes toward individuals with dementia; 3) Measure improvements in confidence in managing dementia care; 4) Gather participant feedback on the CARES-D training program; 5) Compare pre- and post-training outcomes to determine the program's effectiveness.
- Are a practicing physiotherapist, occupational therapist, physiotherapy assistant, occupational therapy assistant or kinesiologist with a minimum of 6 months of experience.
- Work with individuals living with dementia, regardless of the setting
- Work anywhere in Canada
- Fluent in English
The objective of this study is to understand: (1) what community-based interventions caregivers/care partners for persons living with young onset dementia (i.e., dementia diagnosed under the age of 65) are accessing across Southern Ontario; (2) caregivers/care partners perceptions towards the community-based interventions they have accessed; and (3) the reasons, if any, for not accessing community-based interventions.
The results of this study will be used to help inform the development and enhancement of community-based interventions for persons living with YOD and their caregivers/care partners, and is a part of my PhD dissertation.
To participate you must:
-be a family caregiver or care partner to a person living with young onset dementia OR
were a family caregiver/care partner to a person living with young onset dementia within
the past six months
-be 18 years or older
-live within Southern Ontario
By understanding the perspectives of various stakeholders involved in dementia care within Ontario health teams, we aim to enhance the quality of life for individuals living with dementia in Ontario.
You are eligible to participate if you or your loved one is living with dementia and would like to share your experience so that we can act to improve the quality of care for individuals living with dementia in Ontario.
Scientific evidence indicates that healthy lifestyle habits promote brain health and help prevent Alzheimer’s disease.
Our study consists of evaluating a personalized program designed to promote healthy lifestyle habits with the goal of supporting brain health.
This program, called Luci, is available as an online platform with virtual guidance from an advisor. Its purpose is to help participants change their lifestyle habits. It focuses on three areas: physical activity, healthy eating, and intellectual stimulation.
The aim of this study is to determine whether our program helps improve lifestyle habits in these three areas, along with other indicators linked to brain health.
You are eligible to participate if you:
• Are aged between 50 and 75 years of age
• Have not been diagnosed with a cognitive disorder, such as Alzheimer’s disease
• Wish to adopt healthy lifestyle habits in at least one of the following domains: physical activity, healthy eating, and intellectual stimulation
• Have access to a tablet or computer with an internet connection
• Are able to speak English or French
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