What is this Study about?

This study explores the experiences of family and friends of long-term care residents. It focuses on how they experience stress, burden, and mental health challenges, and how a single-session online Acceptance and Commitment Therapy (ACT) or educational materials may help. We will use the information gathered from questionnaires and interventions to understand the effectiveness of these supports and to develop recommendations for improving resources, strategies, and interventions to better meet the needs of family and friends, helping them manage stress and maintain wellbeing while caring for someone in long-term care.

What is this Study about?

This study explores the experience of family and friend caregivers when they are supporting a person living with dementia to discharge from hospital including the emergency room. It focuses on how caregivers experience discharge planning processes and policies, how their perspectives and needs are considered at this key time, and the impacts upon the person they care for and themself in the 6 months after a hospital stay. We will used findings to develop recommendations to improve understanding of the role, needs and rights of caregivers as they care for people who live with dementia in the community.

What is this Study about?

This research will examine the psychosocial impact on informal male caregivers of persons with dementia, focusing on the emotional, psychological, and social challenges they encounter while providing care. It explores the emotional, psychological, and social challenges they experience, as well as their coping strategies, support systems, and spiritual resources. A mixed-methods design will be used to examine the psychosocial experiences of informal male caregivers caring for dementia patients. Quantitative data will be collected using standardized caregiver burden and coping measures, and qualitative data will be gathered through open-ended questions to gain a deeper understanding of caregivers’ lived experiences and stressors.

What is this Study about?

This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

What is this Study about?

The objective of this study is to better understand caregivers’ perspectives regarding the pharmacological management of the behavioral and psychological symptoms of dementia (BPSD). While current recommendations are largely based on the opinions of healthcare professionals and experts, the viewpoint of caregivers remains underexplored. By better understanding their experience, we hope to contribute to improved guidelines and care for individuals with neurocognitive disorders. 

What is this Study about?

Assistive technology products are things that help you function or carry out activities more easily by yourself. Products could be any devices, equipment, instruments, or software. Examples could be mobile phone apps that provide calendar reminders, switches that turn off stoves, or walkers.

Assistive technology services are activities or resources that help you to use or maintain assistive technology products. Services refer to assessment, training, and maintenance that help with choosing, using, and repairing assistive technology products.

Getting these products and services means having to contact different organizations. If these products and services could be bundled as one unit, it may help persons with dementia get them more easily and potentially reduce costs. Right now, policymakers need more information about providing assistive technologies as bundles.

The purpose of the study is to learn about your experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles.

For persons with dementia: We would like to interview you now to understand your past and current experiences. We would also like to interview you each year for up to three years (for three interviews) to see how your experiences change over time. You may leave at any time.

For care partners: The purpose of the surveys is to learn about your views and experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles. If interested, you may also take part in longitudinal interviews (two interviews, one annually) after the initial survey in year one to see how your experiences changed over time. You may leave at any time.

For healthcare providers: The purpose of the surveys is to learn about your views and experiences with assisting persons with dementia and care partners to access and use products and services for managing dementia. This information will help us to know what should be included in bundles and how delivery may be improved. If interested, you may also take part 6 / 10 in longitudinal interviews (two interviews, one annually) after completing the initial survey in year one to see how your experiences changed over time. You may leave at any time.

What is this Study about?

The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

What is this Study about?

This study explores the air travel experiences of people living with dementia and their travel companions. We want to understand moments that may feel stressful, confusing, or overwhelming when travelling by air. The information gathered will be used to create recommendations for airlines, airports, and policymakers, helping to make air travel more dementia-friendly, supportive, and enjoyable for people living with dementia and their families.

What is this Study about?

This study explores the hospital experiences of people living with dementia and their care partners, focusing on how hospital and emergency department processes and interactions, often influenced by dementia stigma, influence care quality and outcomes. Insights gathered through interviews will identify barriers and opportunities to improve hospital care for this population. Findings will be used to develop recommendations that promote more responsive, inclusive, and compassionate hospital practices for people living with dementia and their care partners.