The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
Thinking skills (also known as cognitive functions), change from younger to older adulthood. In this study we are investigating how these shifting architectures of cognition and brain function relate to one another, and how these brain and cognitive changes impact decision-making in younger and older adults.
You may qualify to participate if you are: 1) 60 years of age or older, 2) right-handed, 3) in good health, 4) and have normal or corrected-to-normal vision. Participation will involve completing cognitive tasks, questionnaires, and non-invasive brain measurements using MRI. If you are interested in participating in this study, please contact [email protected]
You are eligible to participate if you:
- Are aged 60 years or older
- Are right-handed
- Are cognitively healthy
- Are able to come in-person to our site, located at the Montreal Neurological Institute
- Have no metal in your body (e.g., pacemaker, metal plates, orthopedic devices, etc.)
- Speak English or French
This research aims to explore the perspectives of older adults living with dementia, providing a nuanced understanding of their experiences and challenges. Second, it seeks to investigate the role of physical activities in their lives, examining how engagement in such activities influences their cognitive function and mental well-being. Finally, this research aims to inform interventions and policies that can support older adults in maintaining their cognitive health and overall well-being.
The data will be used for the researcher’s master’s thesis, and for publishing peer-reviewed and non-peer reviewed articles, conference presentations, webinars, and presentations for professionals.
1.You are eligible to participate if you are a member of the Minds in Motion program.
2.You are eligible to participate if you age 65 and above.
3.You are eligible to participate if you are diagnosed with mild-to-moderate dementia.
4.You are eligible to participate if you actively engaged in some form of physical activity in addition to minds in motion physical activities (e.g. swimming, nature walks, aerobics, chair exercises).
5. You are eligible to participate if you can give informed consent.
This study aims to evaluate the acceptance and usability of the GuardIO Family Care app, a mobile application designed to support community safety for individuals living with dementia or mild cognitive impairment and their care partners. The study also aims to analyze mobility patterns collected from the app to explore how mobility data can contribute to the early detection of cognitive impairment. The findings will help improve app design, inform care strategies, and support early intervention efforts for individuals living with dementia or MCI.
You are eligible to participate if you:
Are 18 years of age or older
Are living with mild cognitive impairment (MCI) or dementia, or are a care partner of someone with MCI or dementia
Are able to use a smartphone or tablet with the GuardIO app
Are willing to participate in the study activities, including using the app, completing questionnaires, and attending an optional focus group
Can understand and communicate in English (or another supported language, if applicable)
Behavioral and emotional changes often accompany dementia and are a leading cause of long-term care placement, even more so than cognitive decline. This study is the first to explore how family caregivers make treatment decisions in response to these emotional and behavioural symptoms. We are interested in understanding whether caregivers turn to medications, consider non-pharmacological strategies such as environmental modifications, or use a combination of both. Using a quantitative behavioural economics model, this study will examine how caregivers weigh the risks and benefits of different treatment options. We are particularly interested in decision-making related to dopaminergic medications (formerly known as “antipsychotics”), which are commonly prescribed despite known risks for people with dementia. The information gathered will help guide the development of resources to better support family caregivers in navigating treatment decisions. Participation involves completing an anonymous online survey and is open to family caregivers involved in medical decision-making for a relative or close friend with dementia.
Participants will consist of caregivers of individuals with dementia who meet the following eligibility criteria:
Participants must be at least 18 years old,
Participants must be able to read English fluently,
Participants must be a family caregiver (partner, spouse, family member, or close friend) of a
person with dementia
Participants must be involved in the medical decision-making for the person with dementia,
Participants must have access to a desktop computer, laptop, or another device with a physical keyboard and mouse/trackpad,
Participants must not be a professional healthcare provider (e.g., physician, nurse, certified nursing assistant).
Additionally, the person with dementia whom they are assisting must be community-dwelling (i.e., they cannot be residing in a residential or skilled nursing facility).
Participants will take part in a one-on-one interview (in person or online) to share thoughts on reminders and changes in behavior that should be tracked by the system. Interviews will last about 60 minutes. A short follow-up (20 minutes or less) may also be requested later to provide extra feedback on the system’s design.
You are eligible to participate if you:
- Are an informal caregiver of a person living with dementia
- Provide at least 30 hours of care per week
- Speak and understand English
- Are able to give informed consent
- (Optional) The person you care for may also join if eligible
This study is testing a digital reminder system for people living with dementia. The system sends alerts when daily routines change and collects feedback from caregivers. The goal is to improve the system’s design and usefulness. Results will help make reminder tools more supportive for people living with dementia and their caregivers.
You are eligible to participate if you are a person living with dementia and you:
- Have a clinical diagnosis of mild to moderate dementia
- Were diagnosed within the past 2 years
- Speak and understand English
- Are able to give informed consent
- Have internet access at home
- Are part of a caregiver-participant pair (dyad)
You are eligible to participate if you are a caregiver and you:
- Are an informal caregiver (family member or friend)
- Provide at least 30 hours of care per week to a person living with dementia
- Speak and understand English
- Are able to give informed consent
- Can participate in a home setup session and follow-up interview
In collaboration with our South Asian community collaborators, our goal is to gain an in-depth understanding of new immigrant, multigenerational, South Asian family caregiving for a relative with dementia amidst COVID-19. The goal is to inform future family-centered, healthcare interventions aimed at supporting equity deserving families during times of crisis.
To achieve our goal, we are starting to recruit family care partners living in a multigenerational home and caring for a relative with dementia from each of the four groups of South Asian families. We will be using a multiple case study to examine new immigrant, multigenerational caregiving for a relative with dementia from the perspective of four groups of South Asian families; 1) Pakistani, 2) Bangladeshi, 3) Indian, and 4) Sri Lankan. We will also be using secondary data sources, including genograms, ecoMaps, and key documents.
We will be conducting interviews with a family care partners from each of the four groups. Following these interviews, we will hold four focus groups with a new purposeful sample of South Asian multigenerational care partners to understand if the findings from the interviews reflect their caregiving experiences thereby increasing the reliability of the study findings.
You are eligible if
1. You are caring for a family member or relative with memory loss or dementia
2. You are living in a multigenerational South Asian Family
3. You Identify with any of these four South Asian Countries: India, Pakistan, Bangladesh and Sri Lanka
4. You live in the Greater Toronto Area (GTA)
The Communication Bridge 3 Study is focused on helping adults with mild to moderate Primary Progressive Aphasia (PPA), a condition that affects language abilities due to neurodegenerative diseases. The study aims to improve functional communication and life participation by providing structured language and communication support remotely through video conferencing.
Participants work with speech-language pathologists to practice communication techniques and learn strategies to address daily communication challenges. The study involves a series of therapy sessions, assessments, and follow-up evaluations to measure changes in communication and participation over time. By tracking participants' progress, the study hopes to identify effective approaches for enhancing quality of life for those living with PPA and their care partners.
You are eligible to participate if you speak English as a primary language, a confirmed diagnosis of PPA in mild to moderate impairment stage, a communication partner that is willing to participate, and sufficient internet connection.
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
If you are interested in participating, please contact [email protected] or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi
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