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  • Observational Study
    In-Person

    Understanding Online Health Information Search in Older Adults: Assessing How Search Results Influence Decision-Making

    What is this Study about?

    This research study examines how online search result accuracy affects people's evaluation of medical treatments, focusing on older adults with potential digital literacy challenges. Using eye-tracking, screen logging, think-aloud protocols, and interviews, the study explores how search accuracy influences judgment. The goal is to optimize trustworthy health websites and create user-friendly interfaces, enhancing health information literacy among older adults. By analyzing attention patterns, thought processes, and search result interactions, researchers aim to understand how older adults make health-related judgments online. This will inform development of search engines better suited for older adults seeking health information.

    Eligibility Criteria

    You are eligible to participate if you:

    - Are at least 60 years of age

    - Are able to speak and understand English well

    - Are able to use a computer for basic tasks (can use a mouse and keyboard)

    Recruitment End Date

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  • Observational Study
    Online

    "Superior by Nature?" Diagnosing Dementia in Northwestern Ontario

    What is this Study about?

    The purpose of this study is to explore the experiences of receiving a dementia diagnosis in northwestern Ontario healthcare systems in order to improve the diagnosis process for others who may be diagnosed in the future, and physicians/health care providers who diagnose people with dementia.

    Eligibility Criteria

    • Are practicing medicine in northwestern Ontario

    • Have experience diagnosing people with dementia

    • Have practiced for a minimum of 1 year

    • Speak English

    OR

    • Have been diagnosed with dementia between 1-5 years

    • Lived in northwestern Ontario at the time of diagnosis

    • Are currently living in northwestern Ontario

    • Speak English

    Recruitment End Date

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  • Observational Study
    Online

    CAN-PROTECT

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

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  • Observational Study
    Online

    Exploring the Uptake and Impact of the Driving and Dementia Roadmap

    What is this Study about?

    This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.

    Eligibility Criteria

    - Are a person living with dementia who is still driving or has stopped driving within the past 2 years

    - Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years

    - Are a healthcare provider who cares for people living with dementia

    - Ability to speak English

    Recruitment End Date

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  • Observational Study
    Online

    Diversifying Research through the Experiences & Attitudes of Minorities (DREAM) – Survey

    What is this Study about?

    Surveying opinions on how to improve diversity in dementia research.

    Eligibility Criteria

    You are eligible to participate if you are:

    1) Involved in dementia research or services

    AND / OR

    2) from an underserved group* in dementia research.

    3)Aged 19 +

    3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

    *Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

    Recruitment End Date

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  • Observational Study
    Online & In-Person

    Decision-Making & Ethics of Substitution for People Living With Dementia Going It Alone

    What is this Study about?

    This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With

    Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute

    decision-maker and how ideas about capacity, consent, and decision-making affect them.

    Interviews will be conducted with:

    - People who are facing dementia alone

    - Healthcare and social service workers

    - Substitute decision-makers for others who are not close family members or close friends

    The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to

    better support people facing dementia alone.

    Eligibility Criteria

    You are eligible to participate if you:

    - Live in Ontario or Alberta AND

    - Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are

    facing dementia alone OR

    - Are a healthcare or social service worker, or other professional who has experience trying to connect

    adult clients with a substitute decision-maker OR

    - Have experience as a substitute decision-maker for someone living with dementia who is not a close

    family member or friend

    In addition, to be eligible you must:

    - Be able to participate in an interview over the phone, on Zoom, or in-person AND

    - Understand the purpose of the study and what participation involves

    -Speak English

    Recruitment End Date

    Find Out More