The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
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- Observational StudyOnline & In-Person
What is this Study about?
The purpose of this study is to get feedback and guidance to create the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s disease (NITE-CAD) program. The NITE-CAD program will be an educational and lifestyle program to support care partners to improve the sleep of their person living with dementia. The NITE-CAD program is based on an American program that improved sleep for persons with dementia. The program includes physical activity, light exposure, and education sessions.
We hope to make create the NITE-CAD program to be feasible to deliver within Canada year-round. The results from this advisory group will be used to inform a future pilot study testing the feasibility of the NITE-CAD program.
Participants will receive a remuneration of $20, in the form an electronic money gift card for the retailer of their choice (e.g., Shoppers, Amazon, Indigo, etc.) per meeting and/or reviewed feedback in recognition of their time and contributions.
Eligibility Criteria
(1) Able to speak and understand English
(2A) Are a caregiver for a person with dementia with sleep difficulties.
OR
(2B) Self-identify as a persons with dementia, who is currently or has previously experience sleep difficulties.
Recruitment End Date
- Observational StudyOnline
What is this Study about?
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
Eligibility Criteria
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
Recruitment End Date
- Observational StudyOnline & In-Person
What is this Study about?
This study explores the experiences of people with a stroke-related communication disability in financial environments such as banks, potential challenges regarding participation in financial environments, and looks for strategies to enhance their financial inclusion.
This study will allow adults with post-stroke communication impairments to have a voice to talk about their problems and challenges in financial environments and will provide them with strategies to enhance their financial inclusion, independence, and quality of life.
Eligibility Criteria
• Live with stroke-related speech or communication disability,
• Have done financial activities or have been in financial places after your stroke,
• Live in Manitoba,
• Are 18 years old or more,
• Are interested in taking part in this study,
• Agree to be audio or video recorded during the study interview.
Recruitment End Date
- Observational StudyOnline
What is this Study about?
The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.
Eligibility Criteria
Meet the following criteria for Phase 1:
Person living with dementia:
(a) aged 40 years or older with a diagnosis of dementia; and
(b) currently living in Canada.
Or
Family or friend caregiver:
(a) aged 18 years or older and with experience in the last five years providing physical, emotional, and/or psychological support for a family member or friend living with dementia at home or in long-term care;
and
(b) currently living in Canada
Meet the following criteria for Phase 2:
Family or friend caregiver:
(a) aged 18 years or older and currently providing physical, emotional, and/or psychological support for a family member or friend with dementia at home or in long-term care;
(b) currently providing at least four hours of support a week for a person living with dementia; and
(c) currently living in Canada.
(d) must speak English
Recruitment End Date
- Observational StudyOnline & In-Person
What is this Study about?
This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With
Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute
decision-maker and how ideas about capacity, consent, and decision-making affect them.
Interviews will be conducted with:
- People who are facing dementia alone
- Healthcare and social service workers
- Substitute decision-makers for others who are not close family members or close friends
The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to
better support people facing dementia alone.
Eligibility Criteria
You are eligible to participate if you:
- Live in Ontario or Alberta AND
- Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are
facing dementia alone OR
- Are a healthcare or social service worker, or other professional who has experience trying to connect
adult clients with a substitute decision-maker OR
- Have experience as a substitute decision-maker for someone living with dementia who is not a close
family member or friend
In addition, to be eligible you must:
- Be able to participate in an interview over the phone, on Zoom, or in-person AND
- Understand the purpose of the study and what participation involves
-Speak English
Recruitment End Date
- Observational StudyIn-Person and Online
What is this Study about?
VRx@Home is a 5-week virtual reality at-home intervention with the goal to explore whether virtual reality experiences can enhance communication between persons living with dementia and their care partners. We also aim to explore how a head-mounted VR system, which delivers a fully immersive experience compares to a Tablet-based technology.
Eligibility Criteria
- Persons living with mild-to-moderate dementia who are living at home
- Person living with dementia has no history of stroke, bypass surgery, or seizure disorders
- A friend/family care partner who speaks and understands English and is willing to also participate in the intervention
- Resides in Greater Toronto Area (Toronto, Peel, Halton, York, and Durham regions)
- Individuals who speak English
Recruitment End Date
- Observational StudyIn-Person
What is this Study about?
We want to determine if a nutrition questionnaire (SCREEN) works well to identify nutrition challenges for older adults with diagnosed memory problems, cognitive impairment or dementia when completed by themselves, or by a care partner on behalf of their cared for person.
Eligibility Criteria
You may be eligible if you are:
• 55 years or older
• Read/speak English
• Live within 45km of Waterloo, Guelph or London.
AND are an:
• Older adult with diagnosed memory problems, cognitive impairment or dementia with a care partner who either lives with you, or who is in daily contact with you and would be able to support reporting of their eating behaviours
• If living in a retirement home, the older adult must have lived in their home for at least 3 months and receive 2 or more meals each day from their retirement home
Recruitment End Date
- Observational StudySaskatchewan
What is this Study about?
The objective of this research is to conduct telephone interviews with people living with dementia and/or their family carers to explore their perspective of, and experience with, local community-based programs and services in southeast Saskatchewan communities and surrounding areas of RaDAR memory clinics.
Eligibility Criteria
- Person living with dementia
OR - Family/informal caregiver of a person living with dementia
AND - Reside in southeast Saskatchewan
Recruitment End Date
- Person living with dementia
- Observational StudyOntario
What is this Study about?
The Aging Swallowing Research Lab is conducting a study to better understand swallowing function in individuals living with dementia.
Eligibility Criteria
- Person living with dementia
Recruitment End Date
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor
Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: [email protected]
Charity registration number: 11878 4925 RR0001
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