The phased progressive research program aims to address the two objectives using the Double Diamond process over two years. During the Discover phase, evidence acquired through an environmental scan and key informant interviews will be used to map dementia care pathways, components, and contextual factors. The synthesized evidence review will support the Define phase, comprising stakeholder engagement to define and refine the problem. A prototype of a dementia care pathway will be created during the Develop phase. The defining and development stages will consist of World Café workshops. The World Café approach is designed to be as inclusionary as possible and is well suited to creating actionable outcomes with large groups of participants, all of whom are regarded as experts of their own lived experience. Evidence in the literature supports the use of World Cafés with people living with dementia and care partners. The Deliver phase will comprise the integrated knowledge translation strategy of the research program
You are eligible to participate if you are living with dementia or MCI or caring for someone living with dementia or MCI
The purpose of this study is to get feedback and guidance to create the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s disease (NITE-CAD) program. The NITE-CAD program will be an educational and lifestyle program to support care partners to improve the sleep of their person living with dementia. The NITE-CAD program is based on an American program that improved sleep for persons with dementia. The program includes physical activity, light exposure, and education sessions.
We hope to make create the NITE-CAD program to be feasible to deliver within Canada year-round. The results from this advisory group will be used to inform a future pilot study testing the feasibility of the NITE-CAD program.
Participants will receive a remuneration of $20, in the form an electronic money gift card for the retailer of their choice (e.g., Shoppers, Amazon, Indigo, etc.) per meeting and/or reviewed feedback in recognition of their time and contributions.
(1) Able to speak and understand English
(2A) Are a caregiver for a person with dementia with sleep difficulties.
(2B) Self-identify as a persons with dementia, who is currently or has previously experience sleep difficulties.
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
This Phase 2 study aims to study to evaluate the efficacy and safety of study treatment in paticipants with Mild Cognitive Impairment Due to Alzheimer's Disease or Mild Alzheimer's Disease Dementia
Age 50 - 80
Mild cognitive impairment (MCI) or mild dementia due to Alzheimer's disease
The primary objective of this study is to verify the clinical benefit of monthly doses of aducanumab in slowing cognitive and functional impairment as measured by changes in the Clinical Dementia Rating Scale Sum of Boxes (CDR-SB) score as compared with placebo in participants with early Alzheimer's disease.
Age 60 - 85
Must have a study partner
This study explores the experiences of people with a stroke-related communication disability in financial environments such as banks, potential challenges regarding participation in financial environments, and looks for strategies to enhance their financial inclusion.
This study will allow adults with post-stroke communication impairments to have a voice to talk about their problems and challenges in financial environments and will provide them with strategies to enhance their financial inclusion, independence, and quality of life.
• Live with stroke-related speech or communication disability,
• Have done financial activities or have been in financial places after your stroke,
• Live in Manitoba,
• Are 18 years old or more,
• Are interested in taking part in this study,
• Agree to be audio or video recorded during the study interview.
This study, "Stranger than Family: Decision-Making & Ethics of Substitution for People Living With
Dementia Going It Alone", explores how people facing dementia alone are connected with a substitute
decision-maker and how ideas about capacity, consent, and decision-making affect them.
Interviews will be conducted with:
- People who are facing dementia alone
- Healthcare and social service workers
- Substitute decision-makers for others who are not close family members or close friends
The overall goal of this study is to identify opportunities for advocacy, policy, and practice change to
better support people facing dementia alone.
You are eligible to participate if you:
- Live in Ontario or Alberta AND
- Have a diagnosis of dementia or are at-risk and planning for a future living with dementia and are
facing dementia alone OR
- Are a healthcare or social service worker, or other professional who has experience trying to connect
adult clients with a substitute decision-maker OR
- Have experience as a substitute decision-maker for someone living with dementia who is not a close
family member or friend
In addition, to be eligible you must:
- Be able to participate in an interview over the phone, on Zoom, or in-person AND
- Understand the purpose of the study and what participation involves
VRx@Home is a 5-week virtual reality at-home intervention with the goal to explore whether virtual reality experiences can enhance communication between persons living with dementia and their care partners. We also aim to explore how a head-mounted VR system, which delivers a fully immersive experience compares to a Tablet-based technology.
The study is aiming to assess whether nutritional intervention with personalized, preselected prebiotics can affect cognitive function in those with Alzheimer’s disease. This study is placebo-controlled, and participants will be randomized to either the placebo or prebiotic.