What is this Study about?

To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.

What is this Study about?

Researchers at the University of Waterloo are looking for individuals to participate in a research study that explores the perceptions of dementia and health-seeking behaviour amongst Arab care partners in Ontario. This study aims to understand how dementia is perceived by Arab care partners and the use of dementia-related health services and community support services.

Sharing your experience will help us to understand 1) how dementia is perceived by Arab care partners and 2) the use of dementia-related health services and community support services.

What is this Study about?

DELIGHT (DEmentia Lifestyle Intervention for Getting Healthy Together) is a multi-component, group-based healthy lifestyle program for persons living with dementia and family care partners. It aims to improve health behaviours of participants, and reduce the progression of dementia-related impairments and improve physical, social, and mental wellbeing of persons living with dementia and care partners. Following an initial test of the program at the University of Waterloo, the focus of this stage of the project is to work together with community members to adapt the program more diverse contexts, including diverse community centers, rural settings and community groups supporting people of linguistic/ethno-cultural minorities.

What is this Study about?

This qualitative study will examine family experiences of engaging in nutritional care with residents living with dementia in long-term care in Saskatchewan. We will use individual interviews with family caregivers to articulate what enhances or detracts from mealtime experiences for families living with dementia in long-term care, what supports are needed to engage families meaningfully at mealtimes, and what supports are needed to enable family involvement in a resident's nutritional care into later stages of dementia.

What is this Study about?

The aim of this thesis project is to explore how technologies can be designed to allow People with Dementia to continue to follow their rituals in everyday activities. The research question being explored is how can habits and rituals be incorporated in the design of assistive technologies for community dwelling older adults living with dementia or mild cognitive impairment? The purpose of this project is to understand rituals and habits associated with everyday activities. The semi-structured interviews will be conducted with people with dementia and their caregivers in dyads while they engage in everyday activities. The synthesis of the results will identify objects, social, cultural, and other personal aspects that inform rituals and thus engagement with activities. It will also identify rituals that have been adapted due to impairments of dementia.

What is this Study about?

The phased progressive research program aims to address the two objectives using the Double Diamond process over two years. During the Discover phase, evidence acquired through an environmental scan and key informant interviews will be used to map dementia care pathways, components, and contextual factors. The synthesized evidence review will support the Define phase, comprising stakeholder engagement to define and refine the problem. A prototype of a dementia care pathway will be created during the Develop phase. The defining and development stages will consist of World Café workshops. The World Café approach is designed to be as inclusionary as possible and is well suited to creating actionable outcomes with large groups of participants, all of whom are regarded as experts of their own lived experience. Evidence in the literature supports the use of World Cafés with people living with dementia and care partners. The Deliver phase will comprise the integrated knowledge translation strategy of the research program

What is this Study about?

This study investigates the support needs and experiences of the family and friend caregivers of long-term care residents through an online questionnaire.

What is this Study about?

This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.

The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).

What is this Study about?

The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.

In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.