To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.
- are a primary family caregiver of a person with dementia or a related neurodegenerative disorder.
- have access to a computer with high-speed internet; and feel comfortable using email and Zoom (a secure online meeting platform).
- have a video camera on your device. To ensure safety of participants during the program sessions, it is important that participants turn on their video camera. Keeping the video camera on is also important to build trust within the group sessions and when interacting with the researchers.
- are willing to be randomised to one of 3 groups, even if it is not your preferred group.
- are able to commit to a synchronous 8-week online group-based program (described below) and complete daily prescribed daily home practices.
- are able to commit to three assessment sessions: one baseline assessment, one post-program assessment, one 12-month follow-up assessment.
- agree to audio recording of interview sessions and portions of the assessment that require accurate verbal data collection.
- are able to provide blood samples, potentially after a 12-hour fast.
- are able to travel to a LifeLabs clinic for biomarker collection.
- agree to refrain from participating in new studies or programs during the 8-week study session.
- meet the screening criteria during the pre-screening interview.
- ability to speak English.
Researchers at the University of Waterloo are looking for individuals to participate in a research study that explores the perceptions of dementia and health-seeking behaviour amongst Arab care partners in Ontario. This study aims to understand how dementia is perceived by Arab care partners and the use of dementia-related health services and community support services.
Sharing your experience will help us to understand 1) how dementia is perceived by Arab care partners and 2) the use of dementia-related health services and community support services.
We are looking for individuals who:
1. Are from the Arab community AND
2. Are a family member who cares or has cared for a person living with dementia OR Are a family member who cares or has cared for a person with memory challenges
Interviews can be conducted in Arabic or English based on the participants' preference
DELIGHT (DEmentia Lifestyle Intervention for Getting Healthy Together) is a multi-component, group-based healthy lifestyle program for persons living with dementia and family care partners. It aims to improve health behaviours of participants, and reduce the progression of dementia-related impairments and improve physical, social, and mental wellbeing of persons living with dementia and care partners. Following an initial test of the program at the University of Waterloo, the focus of this stage of the project is to work together with community members to adapt the program more diverse contexts, including diverse community centers, rural settings and community groups supporting people of linguistic/ethno-cultural minorities.
Are a person living with dementia, memory problems, mild cognitive impairment or care partners, and community service providers and healthcare professionals in Canadian communities.
Ability to speak English.
This qualitative study will examine family experiences of engaging in nutritional care with residents living with dementia in long-term care in Saskatchewan. We will use individual interviews with family caregivers to articulate what enhances or detracts from mealtime experiences for families living with dementia in long-term care, what supports are needed to engage families meaningfully at mealtimes, and what supports are needed to enable family involvement in a resident's nutritional care into later stages of dementia.
- 18 years of age or older
- able to understand, speak, and read English
- identify as the family caregiver of a person living with dementia who resides or resided in a Saskatchewan long-term care home in the past three years
- are or were involved in mealtimes as part of your caregiving role
- are at least three months bereaved (if applicable)
The aim of this thesis project is to explore how technologies can be designed to allow People with Dementia to continue to follow their rituals in everyday activities. The research question being explored is how can habits and rituals be incorporated in the design of assistive technologies for community dwelling older adults living with dementia or mild cognitive impairment? The purpose of this project is to understand rituals and habits associated with everyday activities. The semi-structured interviews will be conducted with people with dementia and their caregivers in dyads while they engage in everyday activities. The synthesis of the results will identify objects, social, cultural, and other personal aspects that inform rituals and thus engagement with activities. It will also identify rituals that have been adapted due to impairments of dementia.
You are an older adult aged 50+ living with dementia and/or their caregiver
The phased progressive research program aims to address the two objectives using the Double Diamond process over two years. During the Discover phase, evidence acquired through an environmental scan and key informant interviews will be used to map dementia care pathways, components, and contextual factors. The synthesized evidence review will support the Define phase, comprising stakeholder engagement to define and refine the problem. A prototype of a dementia care pathway will be created during the Develop phase. The defining and development stages will consist of World Café workshops. The World Café approach is designed to be as inclusionary as possible and is well suited to creating actionable outcomes with large groups of participants, all of whom are regarded as experts of their own lived experience. Evidence in the literature supports the use of World Cafés with people living with dementia and care partners. The Deliver phase will comprise the integrated knowledge translation strategy of the research program
You are eligible to participate if you are living with dementia or MCI or caring for someone living with dementia or MCI
This study investigates the support needs and experiences of the family and friend caregivers of long-term care residents through an online questionnaire.
You are eligible to participate if you live in Canada, are over 18 years old, and have been providing unpaid care to a long-term care resident for at least 1 month.
This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.
The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).
You are eligible to complete this survey if you are 18 years of age or older and are either:
(1) A caregiver, currently providing care or have provided care recently, within the past year, to a person with a diagnosis of FTD and related disorders. This does not include formal caregivers that provide paid-care, private care services, community funded care services.
(2) A healthcare provider currently working in a primary care clinic and/or in a specialized clinic (e.g., cognitive and movement disorders clinics, memory clinic, etc.) where patients with a diagnosis of FTD and related disorders are assessed and followed clinically. This includes: physicians, nurses, social workers, occupational therapists, neuropsychologists, physiotherapist, etc.
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English