The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
The aim of this study is to develop a large, ethically sourced, and diverse database of voice recordings to determine whether voice has biomarkers for particular disease categories, including neurological and neurodegenerative conditions. The data that is collected will be used to develop a full open-access database to fuel artificial intelligence research related to voice.
- Are between the ages of 44-85
- Are able to read, write, speak, and understand English
- Are diagnosed with one of the following conditions:
- Consent to provide a voice/speech sample
This study examines how people with dementia or MCI perform household tasks, focusing on when they seek support, and which prompts help them complete tasks. The findings will help develop technologies to assist them in completing tasks more independently and safely.
You are eligible to participate if you are:
• An older adult aged 60-85
• Fluent in English
• Diagnosed with dementia or MCI
• Enrolled in outpatient care
McMaster University, in partnership with Ressam Gardens Memory Care Community, is conducting a study on the effects of brain stimulation in individuals aged 50 and older with dementia or memory loss. The research focuses on using repetitive transcranial magnetic stimulation (rTMS), a non-invasive technique that delivers magnetic pulses to the brain, to enhance cognitive function and balance. The goal is to extend the positive effects of brain stimulation in improving cognition and balance in individuals with dementia.
You are eligible to participate if you…
1.) Diagnosed with Dementia and/or memory loss by a clinician
2.) Exhibit adequate oral communication skills and cognitive function sufficient to obtain a score ranging between 10-27 on the Mini-Mental State Exam
3.) Walk or stand with or without personnel or assistive devices
4.) Individuals must be greater than or equal to 50 years of age
This research study examines how online search result accuracy affects people's evaluation of medical treatments, focusing on older adults with potential digital literacy challenges. Using eye-tracking, screen logging, think-aloud protocols, and interviews, the study explores how search accuracy influences judgment. The goal is to optimize trustworthy health websites and create user-friendly interfaces, enhancing health information literacy among older adults. By analyzing attention patterns, thought processes, and search result interactions, researchers aim to understand how older adults make health-related judgments online. This will inform development of search engines better suited for older adults seeking health information.
You are eligible to participate if you:
- Are at least 60 years of age
- Are able to speak and understand English well
- Are able to use a computer for basic tasks (can use a mouse and keyboard)
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
If you are interested in participating, please contact [email protected] or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi
Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.
We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.
- Are between 60 and 85 years of age
- Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s
- Have normal vision (with visual aids, if needed) and no other serious health issues
- Ability to speak English
This study aims to explore how the website, the Driving and Dementia Roadmap (DDR), is experienced by and impacts how people with dementia and family/friend carers manage the driving cessation process. Participants will be asked to use the DDR for 2-6 weeks, record their thoughts in a diary and take part in an interview or focus group.
- Are a person living with dementia who is still driving or has stopped driving within the past 2 years
- Are family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years
- Are a healthcare provider who cares for people living with dementia
- Ability to speak English
Surveying opinions on how to improve diversity in dementia research.
You are eligible to participate if you are:
1) Involved in dementia research or services
AND / OR
2) from an underserved group* in dementia research.
3)Aged 19 +
3)Able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.
*Underserved groups in dementia research include: Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.
A dementia diagnosis impacts the cognitive, functional, and physical abilities of those diagnosed, which will influence their ability to perform activities of daily living including meal preparation and eating. Persons living with dementia can experience a range of difficulties while eating that will impact their ability to consume adequate food and fluids, which include but are not limited to swallowing, chewing, and self-feeding difficulties. Consequently, persons living with dementia are at increased risk of malnutrition and negative health outcomes. The objective of this study is to understand the experience of persons’ living with dementia or diagnosed memory problems and/or their caregivers in managing eating challenges and swallowing problems in the community.
You are eligible to participate if you:
- Speak English
- A person with memory problems experiencing eating challenges or swallowing problems in the community
- OR if you are or were a caregiver to a person with memory problems with eating challenges or swallowing problems.
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